Report Completely Unstable Blood Pressure? in Dysautonomia Discussion Posted December 9, 2013 Welcome to the forum, Trappedat20!It sounds like you are just beginning this journey with dysautonomia and seeing a POTS specialist will help provide more answers. You symptoms sound very much like mine except my bp never goes high. There are lots of people on this forum that do get higher bp's though. Have your docs tried any meds yet? There are many meds and other things that can help stabilize some symptoms. One thought is that some of your bp readings could be off a little if you take back to back bp measurements. A couple back to back is ok but if they are too close together and you take several you may want to switch arms to get more accurate readings. Sometimes the blood flow in the arm hasn't recovered before taking the next reading if they are too close. Just a thought! Of course the basic things like increased fluids (lots of gatorade really helps me, I drink about 60+ ounces a day), and increased salt intake can help POTS. Have you tried these yet? You were so lucky that your mother recognized the symptoms and got you on the right track so soon. Hopefully your doc can help you get your symptoms under control more. And soon! For me, my symptoms eventually "settled down" and my symptoms became more leveled out and consistent over time and with the help of meds and that seems to happen to many others so Dont give up hope! Things can get better Hang in there!!