toni

hi everyone,

so i took my heart rate laying down, sitting up, and standing and this is the results i got:

laying down in bed: 95

sitting up: 116

standing up: 147

i took my heart rate as soon as i sat up/stood up, i didn't wait a few minutes - did i do it right?

and in order to be considered pots, does you heart rate have to stay at these numbers when sitting up/standing up?

for example: my heart rate goes 116 when sitting up but after a few minutes it might go down?

toni

Thanks for you responses. i constantly have to deal with them, its soo annoying!

if you never have them, you are very lucky!!!! they are awful!

Hi Suzy,

Thanks so much for your message! The doctor said that he wanted to test the state of my immune system and apparently its not very strong.

He doesn't know why though. i pretty worried!

tons of hugs & love,

toni

hello ladies,

hope you all are having a good day.

i was wondering if yeast infections are a common problem that you all suffer?

i have them constantly and i find it quite worrying.

x toni

i just realized that i didn't answer any questions that you guys asked?! sorry - brain fog!

regarding the auditory hallucination i had - i started effexor a couple of weeks ago and i haven't had a hallucination prior to that so maybe it's from the medication??

and in regards to the autonomic specialist - i'm going to ask my family doctor to refer me to dr. carlos morrillo - i'll let you know how it goes tomorrow - hopefully successful!

x toni

hello everyone,

has anyone ever had testing for their immune cells?

i had tests done for my cd4 & cd38 cells and i just got my results - they are pretty abnormal according to my doctor?!!!

anyone else had this?

toni

thank you everyone for your responses! i feel so much better after getting all your advice!!

i love this forum - i find everyone so helpful!

x antonija

hello everyone,

i have some strange symptoms going on the past couple of days and just wondering if anybody else has expierenced any of these?

-i noticed that my blood pressure drops really low at night right before bed

-i wake up every morning with acid in my throat, sometimes it feels like its in my ears too?? sometimes it lasts all day, sometimes not. it just BURNS!

-i've looked at the past messages and i've noticed alot on sleeping. i've been having real trouble sleeping - everytime i close my eyes i get flashing images, somtimes of actual things like people, sometimes

of just light. AND this morning when i woke up i was just lying in bed when i heard someone say my name in my ear!!! and nobody was home!!! I'M HAVING AUDITORY HALLUCINATIONS NOW??? i'm sooo fricken scared!!

i feel like i'm losing it!!!!!

toni

hello everyone,

i'm just curious if there is any members that have seen dr. carlos morillo in hamilton, canada or have heard anything about him?

hugs,

toni

Hello Everyone,

I just want to start by thanking you all for welcoming me and for your quick replies! I also want to thank you all for your all of your advice- it has been extremely helpful.

I've decided to ask my family doctor to refer me to Dr. Morrillo. i'm very nervous because i have a feeling my family doc won't go for it!

I have a doctor's appointment with my family doctor on thursday so i'll let you all know how it goes - wether or not i'm successful.

If my family doc does refer me to Dr. Morrillo i might not be able to get in to see him for a year or so, so i'm going to have to learn how to cope until then!

My family doctor ran some hormonal/adrenal tests and i will be getting the results this thursday as well - i'll let you know what the results are. i'm interested in seeing if everything is normal or not!

i have a quick question:

have you guys heard of dysautonomia being caused by long-term ssri use?

i was on effexor for 5/6 years.

also my doc put me back on effexor to help cope with these dysautonomia symptoms and i thinking it might be helping lessen the severity of the symptoms?

can this happen?

is it possible that effexor could have caused my dysautonomia and that when i go back on it, it helps a little?

weird! i hope i'm not confusing you too much!!

i'm sooo happy that i found this website!! i don't feel soo alone anymore!! it gives me hope to speak to people that can relate.

tons of hugs

toni

xxxx

Hello Everyone,

My name is toni and I'm a 26 year old female from Saskatchewan, Canada.

4 weeks ago my whole life changed for the worst.

I was at work when I had this "attack" - my hands & feet went freezing cold, i felt like I couldn't breathe, and my heart was going crazy.

I went to the ER and they admitted me overnight releasing me the next day with the simple diagnosis of sinus tachycardia possibly caused by the greens plus supplement i drink.

The cardiologist was a totally jerk not answering any questions and wanting to rush me out.

I thought okay, maybe this is a one time thing. i thought wrong! since then I have never felt the same again.

these are the following symptoms that I have everyday since then:

- chest pain so bad that it feels like i'm being stabbed in the heart with a knife (it gets so bad that i've gone to the ER 5 times, calling the ambulance once)

- laboured breathing (sometimes i actually have to think about breathing, it doesn't happen automatically)

-sinus tachycardia (the lowest my heart has gone done since that day is 92 resting)

-loss of appetite

-shakiness

-numbness (sometimes my arms, my feet, my head)

-head twitching (twitching of arms, legs)

-when i'm sleeping i feel like i stop breathing.

-white floaters in my eye

-my heart pounds so loud that it feels like its right beside my ear

-sometimes feels like my heart is in my back when i'm on the couch watching tv

-i have this constant acid in my throat! acid reflux? it's awful.

-upon waking up in the morning my heart goes crazy fast and i'm not even out of bed yet!

like i said above i've been to the ER 5 times and they just run the same 3 tests:

-chest xray

-ecg

-blood work

and they all come out okay except the ecg shows sinus tachycardia.

my family doctor put me back on effexor 75mg to help me cope. i kinda think that he thinks its all in my head!

i emailed all the canadian doctors listed on this website and explained my situation, the only one that emailed back was Dr. Carlos Morillo who concentrates on pots syndrome - he said that he would like to see me this year, all i need is a referral from my family doctor.

should i ask my family doctor to refer me to Dr. Morillo? the only thing is that i don't think i have pots because when i stand up, i'm not dizzy and my blood pressure doesn't drop. i do think that i have a dysutonomia of some kind but i don't think pots..is there a point getting a referral to Dr. Morillo then? he is a 4 hour plane ride from me. i'm at a total complete loss. i can't live like this! i'm at the brink of losing my job, my husband, my family.

brief history of me:

-saline implants 6 years ago

-cfs/fibromylgia after implants

-placed on effexor for 5 years - doctor took me off last august.

i understand that you can't tell me what i have, but maybe does it sound like something: ie. mvp syndrome,

look forward to hearing from you,

toni