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momma

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Posts posted by momma

  1. Question About Autoimmune Testing

    in Dysautonomia Discussion

    Posted

    Hi,

    I just have a question. I have been reading a lot of things on here, and haven't seen anything about the blood test that I had done. It's a antibody marker called ACHR.neurol.AB. It measures if you have antibodies to the ganglia. Has anyone else on here had this test done? And if so where did it lead your Drs.? Or has anyone on here heard of this? I am just wondering. Anything anyone knows about this would really help me.

    Thanks so much,

    Healing Hugs to all

    Suzy

    reply:

    not sure if this will help but my daughter had a blood test to tell if she had hashimoto's. i'm not sure of the exact name but i know it measured antibodies. hers were very high which showed she had hashimoto's.

    healing hug back to you....momma

  2. The Answer We Found Has Created More Questions

    in Dysautonomia Discussion

    Posted

    hello everyone. my daughter was diagnosed with hypothyroidism caused by hashimotos in march of 2008. started synthroid. was feeling better within a month but never really the same. she started having episodes of severe stomach pain, headaches, nausea, fatigue, etc. we kept taking her to the doctor, who ran numerous tests and sent us to other specialists. everything came back normal. then the doc said it was probably psychological. i know my daughter and i knew something was very wrong but it was not in her head. i requested the doc refer her to mayo in rochester. we got an answer within 15 minutes of seeing the first doc there. autonomic nervous system dysfunction. specifically POTS. we were relieved to finally put a name on it. but it has raised more questions...

    first how do you drink 2-4 liters of fluid plus all the salt you can stand when you are so nauseas most the time you can't stomach a sip???

    second my daughter recently had a uti. they gave her bactrim. took care of the uti but she had an allergic reaction. ran a fever of 103 and higher for three days before they figured out what it was from and stopped the bactrim. after that she felt great. even normal as she puts it. today she says she is ok but not as good as yesterday or the few days before. my question is has anyone ever had pots just switch off?

    third mayo says most post viral teens outgrow this in a few years. they also think her hashimotos triggered it. hashimotos is autoimmune not viral so i'm not sure what to make of this???

    please any opinions would be greatly appreciated.

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