bjedland
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Posts posted by bjedland
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1. Betty Jo
2. 32
3. POTS, hypothyroidism,bipolar
4. hypothyroidism 29, bipolar 31, POTS 32
5. north dakota
6. symptoms at worst-fainting, fatigue, tremors (sometimes so bad i am unable to do daily tasks such as eating) heart palps, nausea,joint and muscle pain
7. symptoms at best-tired, heart palps, tingling sensation throughout my body
9. Medications/treatments that i am trying now- midodrine, proprananol, wellbutrin, synthroid, lamictal and seroquel
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I am kind of new here so bare with me.....i just started the ssdi process in the last couple of months and it has been a nightmare.....my diagnosis is hypothyroidism, bipolar disorder and POTS........the paperwork is never ending and they have told me that just because my drs say i am unable to work does not mean i will be approved.....does anyone know what it does take and how the best way is to go about it?????
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I am seeing a dr at the mayo clinic in rochester mn.......dr low is a neurologist who specializes in autonaumic dysfunction.......he really seems to know his stuff.....I had been to see every dr in the area (north dakota) and nobody was able to put a finger on my problem.....i seen dr low one time and he put me on the tilt table and done a few other tests and he diagnosed me ......I dont know how far rochester is from you but it sure was worth the nine hour drive for my family.....
good luck
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I am from north dakota but wasnt diagnosed until i was sent to the mayo clinic in rochester minnesota....Dr Low is my neurologist ....he was and is incredible.....
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I am from north dakota but wasnt diagnosed until i was sent to the mayo clinic in rochester minnesota....Dr Low is my neurologist ....he was and is incredible.....
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I was just diaganosed with POTS and started on Propranol 80mg extended release.....I thought that sounded like a large dose to begin with.??????
light sensitivity?
in Dysautonomia Discussion
Posted
Does anyone have problems with light sensitivity? I used to be able to spend days outdoors and never get sunburned. Believe it or not I got sunburned outdoors in about three hours in March in North Dakota. I am not sure if it is a side effect from all my meds or if it too is something new for me to deal with.