Kim Baker

Hi,

I’m new to the Boston area and would like to know which neurologists people have seen in this area and who you recommend.

Thank you in advance.

Kim

Hello All,

I remember reading somewhere on this site information, helpful hints, etc etc on getting Social Security Disability. I have not been able to locate where I read that. If anyone can remind me where that was I would greatly appreciate it.

Wishing much wellness,

Kim

Thank you to everyone that has said hello and welcomed me. It is very comforting.

Kim

Hello, Kim...Welcome to the elite POTS group. You've come to the right place. So sorry you are having to go through this.

Are you taking any medications to help deal with your symptoms? Many of us have gotten some relief from such drugs as midodrine, florinef, mestinon, beta blockers, procrit, neurontin, and the list goes on.

Hope to talk with you later.

Lois

Hi,

Thank you so much for responding to me! Yes, I am taking Midodrine, Wellbutrin and a beta blocker. My resting pulse drops into the high 30's so I am limited in what I can take. I am also on methotrexate for another condition I have. I wear compression stockings and drink gatoraid as well. Any other suggestions?

Kim

Hi,

Thank you to the few that have responded to me. This has been a very difficult time. Every morning I wake up and hope this will be gone so I can return to my life. I took one day off from work to rest as I was feeling very tired and here I am a month later out of work, not living at home but with my mom, not leaving the house, going from the bed to the bathroom or a recliner. When will this change? How long will it take?

Hello Everyone,

What a wonderful help this site has been to me. I was diagnosed three weeks ago with dysautonomia while hospitalized for episodes of fainting, skipping heart beats, bradycardia, fatigue etc etc. In retrospect, this all began 30 years ago at 14 and I have since had long periods of disability with diagnosis after diagnosis throughout my adult life.

Question.... is it common to have joint pain and/or sacroiliac problems? Also, I have had kidney stones, degenerative disc disease and herniated discs. Could this be a part of the disorder or just bad luck on my part?

Thanks to all of you!

KIm