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2017 Age of Onset Survey Results


During the summer of 2017, DINET conducted an informal survey that asked questions about the age of onset of dysautonomia symptoms, diagnosis and the experiences our female members had during the diagnostic process.  The survey results contained in the pdf below show the raw numbers collected from respondents answers, as well as selected written answers from respondents.  Many women shared their stories within the survey answers and the similarity of experience was striking.  

This was not a scientific study and the data presented represents a sampling of information and opinion and should not be interpreted as research.  

Special thanks to Trudi Davidoff for writing the survey and compiling the results.  


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Edited by edriscoll

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