Angelika_23 Posted June 2, 2007 Report Share Posted June 2, 2007 Hello,I woke up this morning with a "sunburn" sore feeling along my back, shoulders and arms. The lightest touch to my skin is very painful. I have not been in the sun at all. I don't have a rash. I do have a headache that won't go away. I was on an oral steroid for 16 days for an allergic reaction, it just ended on Tuesday, maybe that could do this to me?Thanks,Angela Quote Link to comment Share on other sites More sharing options...
lloppyllama Posted June 2, 2007 Report Share Posted June 2, 2007 Hi sorry to hear that your having such a rough time.... Perhaps could it be from going off the steroid, since that med. was probably very storng, so perhaps the drastic change to your body is what caused it??Best of luck, hope your feeling better!!Mary Quote Link to comment Share on other sites More sharing options...
Angelika_23 Posted June 4, 2007 Author Report Share Posted June 4, 2007 Well, the skin hurting thing has spread to almost my entire body. The lightest touch hurts me. My muscles are hurting and are weak. I went to see my PCP again, and he said it sounds like some kind of neuropathy. He ordered a lot of bloodwork to rule other stuff out.I called my cardiologist, told him about the neuropathy suggestion, and we talked at length about how I'm feeling, what's going on, etc. He said it sounds like I may have something wrong in my central nervous system, and after all the bloodwork from the PCP comes in normal I will have to go see a neurologist. He says too many different things are going wrong at the same time. I keep wondering if that Chiari malformation could have anything to do with all this. Quote Link to comment Share on other sites More sharing options...
Angelika_23 Posted June 5, 2007 Author Report Share Posted June 5, 2007 Hello,My bloodwork came back normal. So it is off to the neurologist I will be going.Angela Quote Link to comment Share on other sites More sharing options...
lloppyllama Posted June 5, 2007 Report Share Posted June 5, 2007 Wow Angela you sure are going through a hard time right now! That must be soo incredibly annoying to have your skin hurting like that all the time, and all over your body. Sounds like your dealing with this very well, good luck I hope that the neurologist figures out what the problem is for you so that you can get that taken care of!! Quote Link to comment Share on other sites More sharing options...
Dawg Tired Posted June 5, 2007 Report Share Posted June 5, 2007 I had that problem... I was told it was all in my head by a neurologist I was sent to.A couple years later I was diagnosed with Fibro. Mine seems to be a neuropathy of some kind. Quote Link to comment Share on other sites More sharing options...
ode_to_fantasy Posted June 6, 2007 Report Share Posted June 6, 2007 Usually my skin starts hurting really bad when I'm extremely dehydrated....perhaps that could be a reason? Quote Link to comment Share on other sites More sharing options...
Angelika_23 Posted June 6, 2007 Author Report Share Posted June 6, 2007 I had that problem... I was told it was all in my head by a neurologist I was sent to.A couple years later I was diagnosed with Fibro. Mine seems to be a neuropathy of some kind.What is Fibro? How do you deal with it? Does the pain go away? Did you/Do you have a lot of headaches too?Sorry for all the questions,Angela Quote Link to comment Share on other sites More sharing options...
Dawg Tired Posted June 8, 2007 Report Share Posted June 8, 2007 Fibromyalgia. The pain comes and goes. Headaches - well, not constantly, and they wax and wane. You might do a search for it on the internet to get a better idea what it is and what it involves. I know, in my case, anti inflammatories do not help. I find heat to be my bigget ally, I bought a heated mattress pad, and warm baths seem to help with the skin pain.I am so sorry you are gong through this, but know you aren't alone. Quote Link to comment Share on other sites More sharing options...
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