lamp_girl Posted October 28, 2018 Report Share Posted October 28, 2018 I often get these random, very short duration pains in various parts of my body-- often my fingers, but sometimes I also get soreness-type pain in my face or legs. They don't really go away when I lie down, but I feel like they are worse in the evening. They're not very painful but feel worrying-- is it a POTS thing? Could this be something like fibromyalgia or small fiber neuropathy? Quote Link to comment Share on other sites More sharing options...
Echo Posted October 29, 2018 Report Share Posted October 29, 2018 Hi @lamp_girl This happens to me. And mostly on the right side. Exactly like you say, face (including teeth! Dentist did x-rays and says my teeth are perfect), hands, legs. Sometimes neck. It seems to flare up when I am sick (like have colds or whatever). I have had nerve conduction tests done and they came back normal. I don't worry about it too much, it seems to come and go and just be one of the various annoying symptoms of dysautonomia. I wonder if inflammation has something to do with it since I get mine when I am sick? Have you had any testing done? Quote Link to comment Share on other sites More sharing options...
lamp_girl Posted October 29, 2018 Author Report Share Posted October 29, 2018 I haven't! I wonder if it could be some electrolyte-type issues? I also had restless leg issues/muscle cramps for a while that went away when I took iron supplements-- maybe you should try that and let me know if any of your issues go away? Sometimes I have extremity pain that also gets better with warmth, so I wonder if part of the pain is circulation issues. It's encouraging to know that other people have this too. How long has this been going on for you? Let me know if you ever figure out what it is! Quote Link to comment Share on other sites More sharing options...
Echo Posted October 29, 2018 Report Share Posted October 29, 2018 @lamp_girl Two years...it was one of my first symptoms. But I can go for a really long time not feeling any of it and then it will flare up again. I haven't tried any supplements because I'm too scared to be honest. So many people seem to be reacting badly to various things on here so I'm cautious... I also get restless legs at night sometimes. It also comes and goes. Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted October 29, 2018 Report Share Posted October 29, 2018 You may want to have B12 tested. Mine was low earlier this year and I was having pins and needles, weakness and random pains. After months of supplementing, I feel a lot better. It also seemed to trigger a POTS flare up for me. There are studies linking low B12 to autonomic dysfunction. Quote Link to comment Share on other sites More sharing options...
Echo Posted October 29, 2018 Report Share Posted October 29, 2018 Thanks @MomtoGiuliana, I have had it tested a couple of times in the last two years and it always comes back smack bang in the middle of normal range I might try some B2 supplements though. That is also supposed to help with nerve issues...maybe. Quote Link to comment Share on other sites More sharing options...
Potsie1990 Posted November 4, 2018 Report Share Posted November 4, 2018 Yes, and it can be severe, but just had an EMG 48 hrs ago and they found no neuropathy or muscle damage. It must be a pots thing Quote Link to comment Share on other sites More sharing options...
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