Guest Posted October 24, 2015 Report Share Posted October 24, 2015 I was prescribed this medication for pots. But I'm concerned about high blood pressure. When I stand up at times I get high blood pressure spikes. Not sure what to do Quote Link to comment Share on other sites More sharing options...
Guest ANCY Posted October 25, 2015 Report Share Posted October 25, 2015 I am on Florinef 0.15 MG 3 x a day for low blood pressure. I did notice more extreem spikes in blood pressure following passing out. My body seems to over compensate when my blood pressure drops and then level out. When I asked my Dr about the spikes they were not overly concerned, for me, so had me continue to take it unless my blood pressure average is to high. Hope that makes sense. Quote Link to comment Share on other sites More sharing options...
valiz Posted October 30, 2015 Report Share Posted October 30, 2015 Ancy, I too have overcompensation( a high B/P for me is 145-150/ 90-100) after passing out from low B/P.. Otherwise my B/p stays low to normal in spite of taking Fludrocort .3 mg once a day. Fludrocort has been a big help since I am hypovolemic and am now able to retain fluids better. I have no edema even with that dose. liz Quote Link to comment Share on other sites More sharing options...
Guest ANCY Posted October 30, 2015 Report Share Posted October 30, 2015 Liz, Thank you for sharing. How often do you pass out? Do you find anything helpful in managing syncope? Interesting about the hypovolemia, I've been hospitalized a couple times for it. It has not been as much of a problem since they increased my dose of florinef last year and I started having adequate fluids via j tube. Hope you are doing well. God bless. Quote Link to comment Share on other sites More sharing options...
ks42 Posted October 30, 2015 Report Share Posted October 30, 2015 I was given Florinef as one of the first medications to try by a Mayo POTS specialist, even though I was having blood pressure as high as 160/110 (sometimes a lot higher) regularly at the time. The rationale was that a lot of POTS patients' blood pressures spike due to blood volume instability. When you stabilize blood volume with something like Florinef, blood pressure will go up in people who have low BP, and will come down in people who have high BP. At least, that's the way it was explained to me by one doc. Other docs may have other opinions, as I don't really believe it's an exact science as of yet.. just a lot of guesswork!What we did, though, to make sure nothing weird happened with my BP, was start with 1/4 of a 0.1mg pill. Took that for a week. Then, took half a pill for a week, then 3/4 of a pill for a week, until finally the whole pill. Kept an eye on blood pressures the whole time. If you're worried about it, ask your doc if you can start with a super low dose like that and taper up. Keep an eye on your blood pressure (take a daily reading) while you're tapering up. Quote Link to comment Share on other sites More sharing options...
SarahA33 Posted October 30, 2015 Report Share Posted October 30, 2015 Robstah,If you've got concerns regarding your BP spikes and the Florinef, I'd suggest talking to your doctor about wearing a 24 hour BP monitor. Because I have high bp and orthostatic hypertension, my doctors had me check my bp's 3 times a day when I started this med to make sure I wasn't too high also. I'm not exactly sure of the science behind it, but ks mentioned how the system can basically balance out with florinef. It's been so long, but I think it has something to do with Aldosterone escape. Your doctor can get into detail and science behind that. You asked about how one can tell if they are hypovolemic. I had my testing done at the Cleveland Clinic, and I believe Mayo Rochester does it also. Ks answered your question here also: http://forums.dinet.org/index.php?/topic/27109-new-member-hi-compression-query/ Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.