EGorman Posted January 13, 2015 Report Share Posted January 13, 2015 I was wondering if anyone knows if endometriosis will lead to problems with the ANS (ultimately Dysautonomia)? I have problems with my PPS but other issues are now coming up and my doc is leaning towards Endometriosis. I know some disorders and diseases can cause ANS issues...has anyone heard of this specifically?? Thanks! Quote Link to comment Share on other sites More sharing options...
issie Posted January 13, 2015 Report Share Posted January 13, 2015 It is thought there is a connection between mast cell activation syndrome MCAS and endometriosis. I had it. Do a search on the forum. We talked about it years ago. Sorry you may have it. It is not fun. Issie Quote Link to comment Share on other sites More sharing options...
Raisin Posted January 14, 2015 Report Share Posted January 14, 2015 I also have endometriosis. I haven't heard of a connection myself other than a mention somewhere about it is being thought of by some as another type of autoimmune issue. I can say that my Pots stuff hit hard right when my abdominal pain got to a point where I was hospitalized and I had my appendix out. They then saw that endometriosis was in quite a few places including attaching itself to my appendix. I will also search for what Issie is speaking of. Sounds interesting. Sending you well wishes. Quote Link to comment Share on other sites More sharing options...
issie Posted January 14, 2015 Report Share Posted January 14, 2015 One thing thought to help is progesterone. It is thought that there is an estrogen dominence issue. I wish I had tried this before my complete hysterectomy. That was my 8th ab surgery due to endometriosis and a ruptured appendix. I was 36 when I had my last surgery for all the damage. I've talked about it before so you can look it up. Issie Quote Link to comment Share on other sites More sharing options...
Psalm 23 Posted January 15, 2015 Report Share Posted January 15, 2015 That's an interesting question. I had severe endometriosis and infertility issues in my 20's which required two surgeries. A number of years later I end up with a PoTS, MCAD and EDS diagnosis. I have also read articles discussing a connection between MCAD and endometriosis. I haven't read anything specifically connecting endometriosis with dysautonomia however. I'm sorry you are having to deal with this painful issue. Janet Quote Link to comment Share on other sites More sharing options...
sideofsalt Posted January 15, 2015 Report Share Posted January 15, 2015 How do endometriosis and appendix related issues present? What are the symptoms and how are the two tied together through diagnosis? Quote Link to comment Share on other sites More sharing options...
Raisin Posted January 19, 2015 Report Share Posted January 19, 2015 I had pain in my lower right side. It started as a pain across the whole lower abdomen and then focused right where me appendix was with all the typical symptoms. (Hurt more after the doc pressed on it and then let go). They then did a CT and my appendix was slightly swollen. The doctors started disagreeing that it was my appendix and the surgeon in the hospital actually didn't believe me at all. Two weeks later, I saw his partner (who had removed my gallbladder before) and he believed me and did an appendectomy as well as exploratory. He then said the endometriosis was attached to the appendix and was invading the wall. It was also attached to my ovary as well as a few other places. I also remember getting very bloated at one point but I don't know if that is a normal symptom or not. I was lucky the second surgeon took me seriously as my appendix could have burst. I hope that was a learning lesson for the first surgeon. The endometriosis pain, for me, is a pretty sharp pain but usually quick and sometimes feels like a pulling on my hips (if that makes any sense). And, it is worse during that time (you know what I mean). I do know, though, that ladies feel different pains with endometriosis and that may be because it can kinda locate anywhere. It is usually very thin (like scar tissue) and therefore doesn't show on a ct. That's the bummer of it. Someone has to put the pieces together and consider endometriosis as a cause of chronic pelvic pain. Sorry so long a response! Lol. Quote Link to comment Share on other sites More sharing options...
sideofsalt Posted January 19, 2015 Report Share Posted January 19, 2015 Thanks to you ladies for bringing this topic up. Raisin, for the last several months and every other month, I have had sharp pain in my lower right abdomen during or around ovulation time. I've thought it to be appendix-related because of the location but the symptoms don't progress, and go away after 24 hours (with no additional symptoms), so I've written it off as ovulation pain although the most ovulation pain I've ever experienced in my life. At times it is pulling on my right pelvis. I have not had those symptoms link with POTS symptoms yet, as far as I can remember. Quote Link to comment Share on other sites More sharing options...
Raisin Posted January 20, 2015 Report Share Posted January 20, 2015 Hello sideofsalt! (Love love love the name), I also will feel ovulation sometimes. I kinda laugh because I will be walking around and then I get a sudden ow! Pain and like you, it goes away although mine doesn't last for a whole 24 hour period. Sometimes cysts can also cause this type of pain (usually benign). I would recommend a gyno consult (in my opinion) or some health systems have pelvic pain specialists as they can check things over and they know where to press to check the different types of pain. It is a bit difficult to figure it all out as our abdomens contain a lot of stuff! Lol.EGorman, I hope you feel better soon! Quote Link to comment Share on other sites More sharing options...
sideofsalt Posted January 20, 2015 Report Share Posted January 20, 2015 Thanks Raisin - I will definitely check into it when I see my OB next! Quote Link to comment Share on other sites More sharing options...
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