JRC09 Posted April 11, 2012 Report Share Posted April 11, 2012 Hey guys, I wanted to check in and say that since my last flare I have been feeling a lot better. I am getting an appoitment with Dr. Janice Gilden, in Chicago. I have been able to exercise and run feeling pretty well. Still dizzy, very tired in the mornings, but I have noticed that my tachy upon standing is getting better after the exercise. I have read a lot of your stories, and I feel like my symptoms started very strange. I stated before that I had this weird twitch and tremor the day before the onset of a very bad virus. Then the next day the cardiac symptoms began. I have had this internal tremor and twitch ever since then, and was wondering if this was anyones very first symptom like mine?I highly doubt this is a neurological disease as they don't just happen overnight. I first thought I had BFS, which is a wierd benign twitch/tremor syndrome, but its pretty obvious that has turned into much more. I am just praying that its all part of the pot-viral response, but the fact the twitches and tremors havent subsided makes me think my body is still attacking itself. Quote Link to comment Share on other sites More sharing options...
Alaska Posted April 11, 2012 Report Share Posted April 11, 2012 One day I noticed my foot twitch. I noticed the twitching become more and more frequent and went from just my foot to all my limbs. That happened about 2 years and no other symptoms, (no oi or any awareness of any dizziness). Then two winters straight I developed alopecia and lost hair on my head, an it all grew back both times. Then about 4 years after noticing my foot twitch I got the oi and dizziness and diagnosed nmh. So, for me it was a gradual worsening of twitching and I have them now all day long multiple times an hour. I should say when the dizziness hit it was very sudden though. So I remember the first day of it. Quote Link to comment Share on other sites More sharing options...
bellgirl Posted April 11, 2012 Report Share Posted April 11, 2012 I have a lot of neurological symptoms, kind of like multiple sclerosis, which I thought I had at first, being that I also had a virus that misaligned my eye, (possibly optic neuritis), when all of this began. I have twitching and tremulousness, also. I am dizzy, drop things, and have buzzing, burning, paresthesia, and electric shock like nerve pains. I was just diagnosed last year, but have had symptoms for 14 years now. It is a neuro/cardiac issue for me. I also have Mitral Valve Prolapse, and Sleep Apnea. I also had hypertension for 12 years before being diagnosed with dysautonomia. Quote Link to comment Share on other sites More sharing options...
Monstrosity Posted April 12, 2012 Report Share Posted April 12, 2012 This was one of my first symptoms as well. I was taking Ambien to sleep and would try to stay awake on it. One night I started getting them and needless to say I stopped taking Ambien. Quote Link to comment Share on other sites More sharing options...
SeattlePotsy Posted April 12, 2012 Report Share Posted April 12, 2012 One of my first symptoms was full body tremors that looked like seizures Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.