Camirae Posted May 24, 2011 Report Share Posted May 24, 2011 Hi. I'm new here. I have some questions for anyone who can help since I forgot to ask my doctor. She diagnosed me with MILD MVP and said the symptoms I have sound like dysautonomia, and I was wondering if it's possible to have dysautonomia without MVP. Ever since my daughter was born a few months ago, I have strange things going on (and my thyroid is okay - I'm hypo due to Graves disease but am medicated on target for it). I have palpitations a lot, not so much beats skipping but the pounding awareness of my heartbeat.I am constantly lightheaded which frustrates me to no end,Chronic headaches.When I talk loudly, breathe deeply, laugh or stand up or sit down, or when I'm excited or scared, I get a rush of pressure in my head and throat and chest, and sometimes what feels like a painful, squeezing heartbeat as well that lasts just seconds and goes away.Tiredness even after 8-9 hours of sleep.Hot flashes and chills.Feel like there's a lump in my throat a lot.Low blood pressure, etc.The most disconcerting symptoms are the ones of painful and squeezing heart pain, and I visited a cardiologist and a MVP specialist, have had several EKGs done, two echocardiograms, and a stress test, and all come back fine. Does anyone else here have those pains? When you mention chest pain with dysautonomia, what does that pain feel like?Maybe I'll make that question another thread.... Quote Link to comment Share on other sites More sharing options...
teecee28 Posted May 24, 2011 Report Share Posted May 24, 2011 I don't have MVP and I have POTS and OI. I have Chronic Angina that is made worse by the Beta Blocker that I take. My Coronary Arteries are very small and the BB cause vasoconstriction. My CP feels like heavy pressure and squeezing. I have had this since 2004. I have had 3 Cardiac caths and a Cardiac Ablation. Everything checks out fine for me too. I take Ranexa 1000mg twice daily for CP and I have Nitro to use as long as my BP can handle it. Hope this helps. It is really scary to have CP. Quote Link to comment Share on other sites More sharing options...
Lovebug Posted May 26, 2011 Report Share Posted May 26, 2011 Hi Camirae,You sound exactly like one of us...Welcome! To answer your question: Yes, you can have Dysautonomia (POTS) without having MVP. You should check out my profile where I have a link you may like. Regarding chest pain, I've had any type you can imagine. Partly due to GERD and partly the Dysautonomia.Teecee,Your beta blocker should cause vasodilation, not vasoconstriction. Are you having a problem with yours? Quote Link to comment Share on other sites More sharing options...
corina Posted May 26, 2011 Report Share Posted May 26, 2011 hi camirae, welcome at the forum! you'll find lots of supporting people here and when you check out the website you'll find lots of information as well. hope you will find the answers you need!take care,corina Quote Link to comment Share on other sites More sharing options...
Soph1802 Posted October 31, 2021 Report Share Posted October 31, 2021 I have those rushes and squeezing whenever I stand, sit, talk too long etc! Did yours go away? Did you ever get answers? It’s so scary! Quote Link to comment Share on other sites More sharing options...
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