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  1. #GivingTuesday is an international day that was started to bring attention to nonprofits and their causes; an international day of charitable giving. DINET relies on donations, big and small and all are important and greatly appreciated. But just as important to DINET's effectiveness are the stories that we all share about our journey, our experiences with this disorder and the people who help us along the way. In honor of #GivingTuesday, please share a story about how DINET or a person you met through DINET has helped you along the way. I will start with mine. When it was first suggested that I may have something called "autonomic dysfunction", I began searching for anything that I could find on the subject. That was my introduction to DINET and many other organizations with a LOT of medical information. I was frightened, very ill and very overwhelmed. I read, printed, memorized and shared the information from all of the sites. I was now well informed but still just as frightened, ill and overwhelmed. And then something changed. I sent an email to DINET asking a question about information found on the site. I expected to wait a while and then receive a followup email with links to more information or a medical answer to my question. What I received was a personal email from a DINET volunteer. Her email gave me the medical answer and links that I needed and so much more. At a time when I was being shuffled from one lab test to another, one appointment after another, I frequently wondered if anyone remembered my name. But this DINET volunteer took the time to share some of the common experiences dysautonomia patients have. She wrote me and asked questions about how I was managing. She encouraged me to join the forum and to continue to reach out to other people sharing similar experiences. Through the forum and discussions with other members, I was no longer isolated and I was better understood. It was that personal one-on-one communication that I so badly needed and that made all the difference to me. I joined the forum and sometimes just reading something that someone else wrote was enough to help ease my own struggle. I became a volunteer for DINET not long after joining and I try to be that "voice" on the other side of the email or message whenever I have the opportunity. As important as the knowledge and education offered has been to managing my illness, I will be forever grateful for the personal touch and experiences shared by the volunteers and DINET members. That's my story...now it's your turn. ******************************************************************** Ways to donate - https://www.paypal.com/us/fundraiser/charity/1552351 shop - smile.amazon.com (select Dysautonomia Information Network) or check out the many other ways - https://www.paypal.com/us/fundraiser/charity/1552351
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