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DINET member name: Nadèche Hanique Nadèche's hometown: Brabant Province, Holland, Southern Netherlands Diagnosis: EDS, POTS Facebook: https://www.facebook.com/happymailforfighters/Instagram: https://www.instagram.com/happymailforfighters/ Click here to read this profile in Nadeche's native language, Dutch What inspires Nadèche's work, in her own words... I have eds, so I’ve been showing symptoms my whole life and was diagnosed when I was 11 years old. I got diagnosed with POTS when I was 19 years old, I am 21 now. For years I wanted to start my own card project, but I didn’t know how to start etc. Last year I made an Instagram account and I found out that there were other people with chronic illnesses having their own projects to support others and that ’s when I realized I should at least try it. So I posted a message on Instagram asking if anyone was interested in receiving a personalized card. I got so many requests in such a short amount of time, so I made a different account just for my project and it has been growing ever since! I’ve always wanted to help and support others. And I can do this work from my own bed, so it works very well for me personally too. Making others smile, makes me smile! I know from my own experience that it is not always easy to live with chronic illnesses, so I wanted to make the fight for others a little bit easier by supporting them and send them some happy mail to encourage them to keep fighting. I also want to make them feel less alone. I started Happy Mail for Fighters on the 29th of June 2017. So I’ve been doing this for almost a year now and I hope to continue this project for many years to come! Nadèche on family and life..... I’m the only one in my family who has these illnesses. I’m very close with my family and they always support me and help me and I’m very thankful for that! I’m also really thankful that my parents and sister help me with my project. Writing is very difficult for me so my sister writes the addresses on the envelopes and my mom brings the cards to the post office because my chronic fatigue makes it difficult to go to the post office etc. I got diagnosed when I was 11 and I got help from a medical psychologist. She helped me so much and I was so thankful! That’s when I realized that that’s what I want to do in life: helping others. It has been my dream ever since to become a medical psychologist and I study psychology now. Hopefully, I can help others cope with their illnesses and show them that life is still beautiful and you can still achieve things and follow your dreams.
DINET member name: Cassandra Pacquin Cassandra's hometown: Cool Springs, NC Diagnosis: EDS, Mast Cell, Congestive Heart Failure email: firstname.lastname@example.org website: Eagles Wings Studio https://www.facebook.com/EaglesWingsStudioNC/ In Cassandra's words..... Hello!! My name is Cassandra and I'm an EDS Trifecta Zebra with Dysautonomia and Mast Cell as well as congestive heart failure. I'm a chef/owner of our family artisan granola bakery business. Over the past year I've had to refocus my energy and talents due to my limitations and have gone back to my original loves of mixed media inspirational art and writing. I love being able to put my education from UMass/Amherst in Fine Arts to good use again!! My pieces are combined mixed texture and finish high-end papers, Austrian Crystals, silk and textured mat finish, and shadow boxes with glass fronts. Each is an original and crafted with love and inspiration. The purple piece is one I recently sold, the one of the leaves is a work in progress that will be 2 6x6 matching pieces with Ecclesiastes 3:1 "To every season..." split between the two. It comprises 4 different colors of textured papers and Swarovski Austrian crystals in amber, and will be matted in a dark brown beveled mat finish and framed in matching black shadow boxes. The pink piece is currently available for sale on the Eagles Wings Studios FB page.