Jump to content
Search In
  • More options...
Find results that contain...
Find results in...

Search the Community

Showing results for tags 'mast cell disorder?'.

More search options

  • Search By Tags

    Type tags separated by commas.
  • Search By Author

Content Type


  • DINET Forums
    • Dysautonomia Discussion
    • Information and Announcements
    • Chit-Chat Forum
  • General Discussion


  • Dysautonomia, Disorders, Diagnostics & Info
  • POTS
  • Video: Living with POTS
  • NCS
  • PAF
  • MSA
  • EDS
  • Newsletters
  • Studies
  • Links

Find results in...

Find results that contain...

Date Created

  • Start


Last Updated

  • Start


Filter by number of...


  • Start





Website URL







Found 1 result

  1. My MIL recently passed away & I've had the opportunity to spend some quality time with my husband's family members. I had always heard that one of my husband's first cousin's had a daughter, who is consistently described as "sickly." Well, she has almost identical symptoms and a diagnosis as my son. (They are 2nd cousins.) This sweet young lady has EDS, NMH, GI motility issues, and possibly MCAD. What are the chances??? I had always suspected that my husband had some of our stuff. He has VERY loose joints and has had several subluxatuions/dislocations. He does faint at the site of blood or even when anyone uses medical jargon that he considers gory - this is a common symptom of NMH. He was very fatigued as a teen and young adult. Between faints or dislocations (VERY few and far between) he is perfectly fine, extraordinarily healthy whereas day-to-day my son and I struggle. Keep in mind that MANY of my family members are also affected. So, poor Mack (my son) definitely gets it from both sides, which may explain the severity of his symptoms. I did NOT marry a family member What's the deal- are we attracted at a cellular level to people like ourselves? Bizarre.
  • Create New...