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Found 3 results

  1. edriscoll

    EDS Overview

    What is Ehler's Danlos Syndrome? EDS is a connective tissue disorder caused by various defects in the synthesis of collagen. Along with Hypermobility Spectrum Disorder (HSD), they are a class of genetic disorders, present at birth but unrecognized for years. There are 13 different types of EDS. Studies have found that EDS is associated with dysautonomia, usually in the form of POTS and OI. Recent findings report 80% of Hypermobility EDS patients have POTS and 33% OI. In addition to the symptoms associated with dysautonomia, some common symptoms of EDS are joint laxity, soft skin, easy bruising, widespread manifestations in the tissue, vascular system and organs. Strategic, customized exercise plans, a skilled medical team, and protection of joints and skin, and pain management are the essentials of a good treatment plan and management of the disorder. To learn more about the connection between EDS and POTS, visit our page "What causes POTS". To learn more about Ehler's Danlos Syndrome, visit the Ehler's Danlos Society at https://ehlers-danlos.com For information about POTS symptoms and treatment, visit https://www.dinet.org/content/information-resources/pots/ Source: Ehler's Danlos Society
  2. After I was diagnosed with EDS, I started doing research and found this doctor, Dr Brad Tinkle who is supposed to be the Dr Grubb of EDS. He's written a few books about it, this being his newest & most up to date: http://www.amazon.com/gp/product/098257715X?ie=UTF8&force-full-site=1 I bought it and think its a wonderful book. I found I've had so many more EDS symptoms & complications that I knew. He breaks down each body system and how it can be affected by EDS and hypermobilty. It's a great reference to have when something goes wrong to take to your dr. It has a lot of practical tips for coping, too.
  3. This is a very good 2004 article from The CFIDS Chronicle written by Dr. Alan Pocinki discussing how Joint Hypermobility relates to Chronic Fatigue Syndrome (or CFIDS), Dysautonomia, Migraines, Irritable Bowel Syndrome, Interstitial Cystitis, Vulvodynia, etc. I searched the forum, but I didn't see this article previously posted. http://www.cfids.org...mer-feature.pdf
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