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Found 4 results

  1. DINET member name: Joey Horist Joey's hometown: Addison, IL Diagnosis: POTS, Gastroparesis email: sharperjoedog@aol.com YouTube Trailer: https://youtu.be/c_LuB8iDdcE Facebook: https://www.facebook.com/joey.horist In Joey's words...... I was recently diagnosed with Gastroparesis and for 9 years now I have been dealing with Postural Orthostatic Tachycardia syndrome. It snuck up on me late one summer night and life has not been the same since. Unfortunately, due to my health, I almost didn't finish high school & I have since had to put my college studies on hold. For the first two years of my illness, I was almost bedridden, so I had to be homeschooled. With all my spare time being trapped in my house I started jotting down story ideas that would pop in my head. I had originally intended to write a creepypasta story, but after having dinner one night I had a chance encounter with someone who turned out to be a local filmmaker. It was then that I decided to take my scary internet story and turn it into something bigger. I had never written a movie script before so updating my story proved to be quite challenging. Almost everything I know about screenwriting has been mostly self-taught, many hours on google looking up different terminologies. Many late nights (which is already common when you have POTS) and a year and a half of hard work later and I am proud to announce that my first short film, "Mentis" is complete and is currently in the film festival circuit. I invite you all to check out my movie's trailer at the Youtube link above. Film festivals prevent me from publicly sharing the full movie at this time, but if you watch the trailer and you like what you see, feel free to contact me through social media or email and I will gladly share the movie with you. I just ask that you please respect the privacy rule. DINET asked Joey, Was there something about the process that helped you cope better with what was happening to your health? Or were you always interested in writing for film and being home all the time seemed like a good time to start?
  2. This caught my attention today and I didn't want to lose it. It was in the body mass index poll thread ... Mack's Mom wrote ... ( I hope you don't mind me copying this). I'm going to google this in a second ... owie ... http://www.childrens...geS2002P39.html
  3. I have had waves of nausea off an on that I am assuming is from the dysautonomia. I have gastritis and GERD and take Rx's for those but sometimes these wave of nausea get pretty bad. I am trying to finish up physical therapy aquaciser--4 more session. When I left on Tues., I thought I was going to toss my cookies in parking lot when leaving. Well, today the cramping was so be while in treadmil but again was off and on and I kept drinking water. When session was over and I started to shower, had to run out of shower and hug the toilet, puking and wretching (no good for the low BP I already have). Since I had that cramping and nausea so bad on Tuesday, and my BP was only 92/64 before therapy, I took extra 15 mg Mestinon before therapy this time (thinking maybe things wouldn't be so bad, but they were worse). I didn't want to pull the call light--could not have got to locked door and wasn't even dressed. I managed to get semi dry enough to get of of bathroom and lie down on one of their empty beds. Therapist came running over--HR was 115 (that was few minutes after I'd been laying and with my OI, my HR has been around 60s when BP drops now). BP systolic was 82 and she never could hear the diastolic on different attempts. I was started on Midodrine in Sept. (but had nausea before that--not so severe). In Oct. Mestinon was added (had been on higher dose of that in past without effects). Later in Oct. the Midodrine was doubled. Could this worsening nausea be the affects of the vasoconstriction in the stomach? Do these meds cause nausea worse? Should I have eaten something with the Mestinon (heart doc said didn't need to)? Can anybody offer insight/share experience? I imagine in down to around 93 lbs. I try to eat small frequent meals when in between the nausea.
  4. Hi All, I've been experimenting with this for the last 6 weeks. I stopped being able to digest my food, esp meat back then. Fwiw. It could be celiac related and I was being cross contaminated with gluten. I had gastroparesis before going gf but it went away. Warm Natural Calm eliminates the feeling that food is stuck in my stomach and keeps me regular as long as I use it with every meal. It works best when warm. Once or twice a day didn't work. The downside is that I haven't found the majic dose that keeps me regular and yet off the toilet. Tmi .. Lol My rationale was that magnesium pulls fluid into our intestines and my constipation / hard stools meant I didn't have enough fluid in my gut. I was surprised that it eliminated the gastroparesis. A side note .. my mercury was high on one of my labs and mercury pulls magnesium. So I need extra magnesium. Ideas ? .. D
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