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  1. Welcome to the Dysautonomia Information Network's (DINET) Forum! **If you are experiencing a true medical emergency, please call 911 or go to your nearest Emergency Room** DINET was created in 2003 because of a lack of available resources and awareness. We are the oldest dysautonomia non-profit and patient forum & support network in the world. Today, DINET is still dedicated to providing international support and offering resources to thousands of patients and caregivers living with dysautonomia. The forum guidelines are not arbitrary and are in place to ensure the DINET forums remain a valuable resource for members. By providing a moderated forum we work offer our members a safe & secure environment for open communication and support. Please take a few minutes to familiarize yourself with our guidelines before joining in discussions. Thank you! Terms of Service Please take a few minutes to familiarize yourself with our guidelines before joining in discussions. DINET may revise and update these Terms of Services at any time. If you choose not to follow the rules agreed upon at registration and before posting, the result is a disabling of your account. Your continued usage of DINET's forums indicates you accept all changes and agree to the following: Purpose & Content DINET's forums are supportive and informational resources for dysautonomia patients and caregivers. Please be advised that posts on the DINET forums are visible to the public. We encourage our members to be cautious in posting personal information, including first and last names, e-mail addresses, etc. Please keep all discussions PG-rated. Account Information You agree to have no more than one username on the forum. Members may not use the term "Dr.", "RN" or other medical professional title or designation in their user name. Members may not manually sign posts with a professional title, such as "Dr." or "RN", that informs or implies that they are a medical professional. Legal Issues You agree that DINET and/or its volunteers will not be held liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of this forum. The content appearing on our website is for general information purposes only. When you submit a question or make a comment on our site or in our dysautonomia discussion forum, you clearly imply that you are interested in receiving answers, opinions and responses from other people You agree to respect copyright law and refrain from illegally posting copyrighted material on this forum. All information on DINET's forums and website is copyrighted. Any information that you do not wish to be treated as Information should not be submitted to DINET's forum. Please contact DINET if you are interested in reprinting anything from the Dysautonomia Information Network website or forums. As a matter of site liability, you agree not to make public statements that express a wish to harm yourself or others. We care about your safety and urge you to seek professional help if you or someone you know is experiencing thoughts of harm or serious depression. International Hotlines (including the United States) can be found here: http://www.suicide.org/international-suicide-hotlines.html Moving, Editing and Deleting Posts You agree that DINET's moderating team may move, edit and delete posts, without notice, that do not comply with the forum guidelines, or for any reason deemed appropriate by the administration for the good of our community and its safety. Doctors and Hospitals You agree to refrain from making disparaging or defamatory remarks about hospitals or medical professionals on this forum. It is fine to make a statement describing your personal experience, such as "I had a negative experience with Dr. ____ ," however, you may not elaborate. If you choose to elaborate on a negative encounter, You may do so as long you don’t specifically name a particular doctor or hospital. Medical Advice The content of DINET's forums is in no way a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with a physician. Please keep in mind that treatments that help one patient may be detrimental to another. Members should never try any new treatment without first obtaining a physician's approval. Participation on DINET's forums signifies that you agree to abstain from giving medical advice to other members. It is not okay to offer a medical diagnosis or discredit a physician’s diagnosis, including advising on medications and treatment plan. It’s okay to share personal experiences and/or opinions on what has or has not helped you throughout your medical journey. Participation on DINET's forums signifies that to abstain from asking for medical advice. While the DINET forum does provide a medium for mutual support, it is not meant to be a substitute for professional counseling. We care about you and your safety. If you need support beyond what the forum can provide, please seek help from a qualified professional. Respect For Others A tone of kindness is appreciated in all discussions and in any message sent using DINET's personal messaging system. You agree, through the use of DINET's services, not to post any content that infringes upon or violates any members rights. Please do not post information regarding anyone else's health without first obtaining that person's permission. DINET encourages you to use good judgment, but please do not be judgmental in posts. You agree to refrain from flame wars, debates and the discussion of "hot topics," which are likely to provoke debates. Common hot topics include, but are not limited to, politics, abortion and religion. Asking for prayer and general religious comments are allowed, but please do not use this forum to promote your religious beliefs or comment on someone else’s. DINET's forum has a built in censor that removes profanity and replaces it with " **** " . Disagreements on the Forum: Other Members: You agree that if you have a disagreement with another forum member you shall not post about it publicly. You agree to handle it maturely within the Private Message feature. Administrators, Moderators or Rules: You agree that if you disagree with DINET's forum rules or the actions of an administrator/moderator you will not publicly post about arguments or disagreements on this or any other forum. We encourage disagreements to be brought to an administrator/moderator through the Private Messaging Feature. You agree to abide by the final decision made by DINET for continued participation. Advertisement, promotion and solicitation DINET does not allow advertisement. Any and all attempts to solicit members to use a particular product, participate in a specific event, visit a business or organization or participate in a specific medical study. Links to commercial websites or any other forms of promotional material is not allowed and will be removed. However, you are free to share your experiences with products, websites, organization and events without trying to influence other members or linking to sites that encourage sales. Links to manufacturers or product pages are allowed for informational purposes. Links to informational articles are allowed. If you are a researcher who would like to list your medical study, please contact DINET at webmaster@dinet.org It is okay to say you are a member of another organization, website or forum. It is okay to say you use a certain business or product. It is okay to say that you participated in a particular fundraiser. However, it is not okay to use DINET's forum to recruit members for other organizations, websites or forums. It is not okay to use DINET's forum to promote businesses, products, or fundraisers. Contact If you have any questions, DINET's administration can always be reached at dinetandforuminfo@dinet.org If you have a question for a specific DINET moderator or administrator, please send your question to that individual instead of posting it on the forum. Username’s for the forum staff: (Administrators/Moderators: MomtoGiuliana & SarahA33) (Forum Ambassadors: Clb75 ) The use of the forum is a privilege DINET provides to members. We strive to keep our forum a safe and enjoyable environment for all.
  2. Terms of Service Welcome to the Dysautonomia Information Network's forum! Please take a few minutes to familiarize yourself with our forum rules before joining in discussions. Posting on our forum indicates your agreement to the following: Content The Dysautonomia Discussion forum is a place for patients and caregivers to discuss topics related to dysautonomia. The Chit-Chat forum is a place for members to discuss topics other than dysautonomia, such as hobbies, pets, jokes, photos, entertainment, and family (including family members' non-dysautonomia related illnesses). Please be advised that posts on the DINET forums are visible to the public. We encourage our members to be cautious in posting personal information. Please keep all discussions PG-rated. Neither forum should be used in a diary/blog type manner. The forum rules apply to all forums. DINET may revise and update these Terms of Services at any time. Your continued usage of DINET's forums will mean you accept all changes. Purpose DINET's forums are supportive and informational resources for dysautonomia patients and caregivers. You agree to have no more than one username on these forums. Legal Issues You agree that the Dysautonomia Information Network and/or its volunteers will not be held liable for any direct, indirect, consequential, special, exemplary, or other damages arising from the use of these forums. As a matter of site liability, you agree not to make public statements that express a wish to harm yourself or others. We care about your safety and urge you to seek professional help if you or someone you know is experiencing thoughts of harm or serious depression. You agree to respect copyright law and refrain from illegally posting copyrighted material on this forum, including medical articles. Click here for copyright guidelines. All information on DINET's forums and website is copyrighted. By submitting information ("Information") to the Public Areas of DINET's forums, you grant the Dysautonomia Information Network royalty free, perpetual, irrevocable, world-wide, nonexclusive right and license to: (1) use, reproduce, create derivative works from, modify, publish, edit, translate, distribute, perform, and display the Information in all forms of media and in any format, now known or hereinafter created; (2) grant sublicenses to the Information to third parties; and (3) transfer, sell, or lease the Information to third parties. Any information that you do not wish to be treated as Information should not be submitted to DINET's forum. Please contact DINET if you are interested in reprinting anything from the Dysautonomia Information Network website or forums. You agree that only medical-related links will be posted on the Dysautonomia Discussion forum. You agree that links posted on the Chit-Chat forum will not exceed a PG-rating and will not solicit forum members. Signatures You agree that signatures added to posts will comply with the forum rules and will not contain links that advertise to/solicit forum members. You agree to refrain from posting images in signatures. You also agree that fonts used in signatures will not be excessively large and that signatures will not be excessively long. If you are unsure if your signature falls within the forum guidelines, please send it to a moderator for approval before posting. Moving, Editing and Deleting Posts You agree that DINET's moderating team may move, edit and delete posts, without notice, that do not comply with the forum guidelines, or for any reason deemed appropriate by the administration for the good of our community and its safety. For reader convenience, similar posts may be merged and duplicate posts will be removed. Doctors and Hospitals You agree to refrain from making disparaging remarks about hospitals or medical professionals on this forum and to refrain from naming doctors or hospitals when elaborating on negative experiences. Clarifications: It is fine to make a general statement, such as "I had a negative experience with Dr. ____ ," however, per forum rules, statements naming a particular doctor or hospital cannot be defamatory in nature. Defamatory: "1. Harmful and often (but not necessarily) untrue; tending to discredit or malign." You may elaborate on negative doctor or hospital visits as long as the particular doctor or hospital is not named, and therefore not defamed. Medical Advice The content of DINET's forums is in no way a substitute for professional medical advice, diagnosis or treatment. Readers are encouraged to confirm all information with other sources and a physician. Please keep in mind that treatments that help one patient may be detrimental to another. Members should never try any new treatment without first obtaining a physician's approval. Clarification to "medical advice:" It is okay to suggest someone seek professional medical advice and treatment. It is okay to say that you had a similar situation in which you were treated with x, y, and z medications. However, it is not okay to tell others what to do, such as, "You should take x, y, and z medications." It is not okay to tell a member what medical tests they must have or to offer a diagnosis. Participation on DINET's forums signifies that you agree to abstain from giving medical advice to other members. You also agree to abstain from asking for medical advice. Counseling While the DINET forum does provide a medium for mutual support, it is not meant to be a substitute for professional counseling. We care about you and your safety. If you need support beyond what the forum can provide, please seek help from a qualified professional. Respect For Others A tone of kindness is appreciated in all discussions and in any message sent using DINET's personal messaging system. Please do not post information regarding anyone else's health without first obtaining that person's permission. You agree, through the use of DINET's services, that you will not post condescending, defamatory, obscene, offensive, violent, racist, profane or illegal material on this forum. DINET encourages you to use good judgment, but please do not be judgmental in posts. You agree to refrain from flame wars, debates and the discussion of "hot topics," which are likely to provoke debates. Common hot topics include, but are not limited to, politics, abortion and religion. Asking for prayer is allowed, but please do not use this forum to promote your religious beliefs. Posts dealing with sex-related issues should have a tone of maturity. DINET's forum has a built in censor that removes profanity and replaces it with "****." Attempts to bypass the censor by the misspelling of inappropriate words will be edited. Clarification: The following definitions are provided to clarify DINET's forum rules. However, DINET's forum rules are not necessarily limited to these definitions. Definitions are from The American Heritage Dictionary of English Language, Fourth Edition. Condescending: 1. "Displaying a patronizingly superior attitude." Defamatory: "To damage the reputation, character, or good name of by slander or libel." Obscene: "1. Offensive to accepted standards of decency or modesty. 2. Inciting lustful feelings; lewd. 3. Repulsive; disgusting." Offensive: "1. Causing anger, displeasure, resentment, or affront. 2. Making an attack. b. Of, relating to, or designed for attack." Violent: "1. Accomplished by force: coercive, forcible. 2. Extreme in degree, strength, or effect: desperate, fierce, furious, intense, terrible, vehement." Racist: "1. The belief that race accounts for differences in human character or ability and that a particular race is superior to others. 2. Discrimination or prejudice based on race." Profane: "1. To treat with irreverence. 2. To put to an improper, unworthy, or degrading use; abuse." Illegal: "1. Prohibited by law. 2. Prohibited by official rules." Judgmental: "1. Of, relating to, or dependent on judgment. 2. Inclined to make judgments, especially moral or personal ones." Disagreements with Other Members You agree that if you ever have a disagreement with another forum member you will not attempt to persuade other members to take your side of the argument or publicly post about it on this or any other forum, blog or website. Please be mature and talk to any member you disagree with privately. Disagreements with Administrators, Moderators or Rules You agree that if you disagree with DINET's forum rules or the actions of an administrator or moderator you will not publicly post about arguments or disagreements on this or any other forum, blog or website, nor will you attempt to petition administrators or moderators to change policy through posts, polls, email, PM or any other service found within the DINET website. You agree that you will not attempt to persuade other members to take your side in any disagreement with administration, moderators or rules. Soliciting DINET does not allow advertisement. This includes, but is not limited to, medical studies, other organizations, fundraisers, products, businesses, websites, forums and Facebook groups.Links to informational articles are allowed (eg journal, magazine or newspaper articles), but links to COMMERCIAL WEBSITES OR WEBSITES (INCLUDING MAGAZINES) THAT ARE PROMOTIONAL IN NATURE are not allowed and will be removed. If you are a researcher who would like to advertise your medical study, please contact DINET. Use of our forum signifies that you agree not to use any services provided on DINET's website or forum to solicit others. Soliciting: "1. To seek to obtain by persuasion, entreaty, or formal application. 2. To petition persistently; importune. 3. To entice or incite to evil or illegal action. 4. To approach or accost (a person) with an offer of sexual services." Further clarifications regarding soliciting: It is okay for you to share your experiences with medical studies as long as you follow forum guidelines. However, it is not okay to suggest members participate in medical studies, or to post information on how members can participate in medical studies. It is okay to say you are a member of another organization, website or forum. It is okay to say you use a particular business or product. It is okay to say that you participated in a particular fundraiser. However, it is not okay to use DINET's forum to recruit members for other organizations, websites or forums. It is not okay to use DINET's forum to promote businesses, products, or fundraisers. Freedom of Speech? Although the U.S. Constitution states "Congress shall make no law abridging the freedom of speech," DINET is not Congress. Freedom of speech rights do not extend to our privately run forums. The forum rules govern the behaviors and activities of users. If you choose not to follow the rules agreed upon at registration and before posting, the result is a disabling of your account. Contact If you have any questions, DINET's administration can always be reached at dinetforums@gmail.com If you have a question for a specific DINET moderator or administrator, please email your question to that individual instead of posting it on the forum. The use of these forums is a privilege DINET provides to members. We strive to keep our forums safe and enjoyable for all. You can help keep these forums safe and enjoyable by contacting a moderator or administrator if you have any problems. Thank you, DINET's Moderating Team
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