Jump to content

Search the Community

Showing results for tags 'diabetes insipidus'.

  • Search By Tags

    Type tags separated by commas.
  • Search By Author

Content Type


Forums

  • DINET Forums
    • Dysautonomia Discussion
    • Information and Announcements
    • Chit-Chat Forum
  • General Discussion

Categories

  • Member Stories
  • Information Resources
    • POTS
    • MSA
    • PAF
    • NCS
    • Links
    • Studies
    • Video: Living with POTS
    • Newsletters
    • EDS
    • Dysautonomia, Disorders, Diagnostics & Info
  • Living with Dysautonomia
    • Mental Health and Chronic Illness
    • Service Animals
    • Work and Disability
    • Technology and Education

Categories

  • Dysautonomia, Disorders, Diagnostics & Info
  • POTS
  • Video: Living with POTS
  • NCS - Vasovagal Syncope
  • PAF
  • MSA
  • EDS
  • Newsletters
  • Studies
  • Links

Find results in...

Find results that contain...


Date Created

  • Start

    End


Last Updated

  • Start

    End


Filter by number of...

Joined

  • Start

    End


Group


AIM


MSN


Website URL


ICQ


Yahoo


Jabber


Skype


Location


Interests

Found 1 result

  1. Hi all, So today, thanks to the knowledge of the amazing posters on this forum, I finally got a diagnosis of MCAD and MCS from the immunologist. From my 1st reaction to diagnosis has been about 6 weeks. I am so greatful for the help of everyone on here who helped me pursue a diagnosis. So I have some questions for others in the same postion, sorry for the long post and ramble in advance! - I have to now carry a medi/bracelet card with MCAD/EDS III, POTS and Diabetes insipidus on it. Any tips on how to present this? Aware most people have not heard of MCAD. I am going to put a card on my keys I think. - Is there anyone else like me who has MCAD and drug sensitivity (i.e cant take antihistamines)? If so what drugs can you take? - is there anyone one here who has normal POTS and MCAD, or just hyper POTS? - Does anyone else have Diabetes Insipidus and MCAD? My Immunologist said that low unrine osmoality can skew the methyl histamine result, becuase of something to do with the creatine. i dont understand exactly what he means but it seems that low urine osmoality can increase the unrine methyl histamine result. My immunologist is contacting an MCAD expert from Spain to confirm my diagnosis because of this. I am being admitted to hospital to try Sodium Cromoglycate next week in case i react to it. i am nervous about this becuase i read on here that someone has had drop attacks from it. I have had this before from zyrtek, and if i cant take Sodium Cromoglycate or anti histamines i'll have to be living in a bubble! They will also be testing adrenaline, hydrocortisone and fludrocortisone. I couldnt tolerate fludro previously. I have a theory that my CNS is super sensitive or theres something wrong with it. I have central diabetes insipidus with no pituatry inflamation etc, extreme reactions to drugs such as the drop attacks and heart rythym disruption from some anti histamines. My head MRI was normal. I also spoke to the Immunologist about the role of stress/stimulation in MCAD/MCS. I can eat some foods fine one day, and then the next day react. The same applies to some chemical smells. He think stress plays a big part of it, as yet they are not sure how, but stress can certainly degranulate mast cells and cuase flushing/urticaria. i wonder if an MCAD patient could induce anaphlaxys throguh a panic attack or extreme stress! One final thing. i had been experiencing what i can only describe as sudden jolts to the head out of no where for a while. Immunologsit thinks they are interestingly associated with sudden MAST cell degranulation. This makes sense to me, recently had them when i smealt a spilled bottle of mouthwash, and was in a room full of chinese food. Sorry for the ramble! Aaron
×
×
  • Create New...