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  1. Hey all. I've been trying to piece together my 9-10 year history of these severe 'attacks'/'episodes' that I had been having up to the point of starting on mcad meds about a year ago. It seems my attacks where never thought to be anaphylaxis shock due to the fact that i never had any known allergies. So, docs never thought of it at the time in the er when i would be admitted over a period of a few days. (My doc now is going to pull up those records and see if they tested me at any of those er times for, is it the triptase level???? im sooo not sure on that one..... yall can fill me in on the correct test for it). But what I would really, really, truly like to know is how you describe your anaphylaxis shock (not any due to a known trigger, such as peanut, etc, but ones that are due to the mcad and an unknown trigger is at play). I know from the beginning, mine started with just 2 or 3 symptoms..... severe inability to breath for no reason and severe weakness to the point of being comatose/paralyzed and unable to communicate because i was focusing on my diaphram and breathing and panting like a dog the whole time. Of course, over the years, more symptoms would jump aboard these attacks.... maybe as the mcad got worse? But, it would help significantly if i could hear from you how/what your anaphylaxic shock episode felt like and if you would say that it was a huge intense amount of suffering with it, along with a feeling you were dying (for me this IS NOT ANXIETY... but a true deep feeling like my body was closing up and shutting down on itself...... yet the docs could find no answer over all these years to these attacks of mine). Ok..... if any of you can help.... I WOULD BEEEE SOOOOOO GRATEFUL!!!!!!! Thank you all!! tennille
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