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  1. Hi everyone, I have been going to one of the Montreal Children's Hospital for a year to get my son diagnosed with POTS. He was diagnosed in 2004 by Dr Goldstein from NIH. Then he was diagnosed in Canada from another researcher on June 22, 2011 and then in Sept 2011. The problem is that none of those researchers wrote the diagnoses down. So finally we went to see Dr Stewart in NY who diagnosed him and wrote a report and treatment plan in October 2011. So now I am trying to find a doctor in Montreal who will prescribe the medication that Dr Stewart has suggested. None of the 5 specialists we have seen want to do it because they don't know our disorder. But the best statement I got was last Thursday when the specialist told my son that he was not sick, that his blood pooling in his legs was normal, that it was normal that his legs turn purple when he stands for 2-3 minutes and that I was putting bad ideas in his mind and that I should push him to have the life of a normal teenager. There are 31 members of my family who are diagnosed presently, and it's the first time in 8 years that one of us has been told that it's a boggus diagnosis and that it is normal to have purple leg when we stand up. He also has sleep apnea diagnosed by 2 sleep studies. The doctor told me to encourage my son to wear his CPAP. I told her that the Sleep Apnea was also imaginary. She said why is that so. I said: "One diagnosis is worth the other one." If my son is healty then he does not have any health issue and the sleep apnea is also a boggus diagnosis. You should have seen her face. She said: "No, no, they did the sleep study and it confimed the diagnosis." So I told her that it's not because she does not know a disorder that it does not exist. Then she told me that she did not have any medication to prescribe him. I told her that I have my list which could work on him. She asked me if it really worked. I told her that without it I faint every time I stand. She said that my son did not need any meds as he is able to function. Ah really! He can't stand 3 minutes without fealing he is going to pass out and if he continues to stand he will faint. I doubt that this is normal! So as we were leaving her, she asked me not to faint in her office! I told her that I would wait until I am outside the building so that the hospital would not be responsible for my body! (My goodness, I can't believe a doctor asked me not to faint in her office!) My son was really upset and discouraged that she did not believe he had symptoms and that he is not worth having medication to help him function. Thanks to reading my venting
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