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  1. Hello all, When I was diagnosed with dysautonomia they said I had NCS. I logged my BP and HR yesterday 4 times. Supine - 119/61 Hr- 40 (8am) standing- 85/48 Hr- 85 Supine- 126/62 Hr- 42 (12pm) standing- 89/55 Hr- 83 Supine- 109/61 Hr- 56 (4:30p) Standing- 88/53 Hr- 88 Supine- 97/53 Hr- 50 (9:30p) standing- 86/52 Hr- 86 So i understand that with NCS you faint because when you stand your BP and HR drop. Except my Hr is spiking anywhere from 32 bpm- 45 bpm upon standing. I did it today at 8am and 12p just to check to see if it was the same and it was. So my BP is dropping but my Hr is raising, and I read it can't be POTS if it drops more than 20/10 which on more than one occasion mine does, more on the SYS than the DIA. and with NCS your Hr is supposed to drop with your Bp when standing, and mine doesn't my Hr raises and BP decreases. so what is this? oh and ETA- this is a good day, before starting Florinef, salt, fluid, and waist high compression stockings my HR would go from 40bpm sitting to 116bpm upon standing and steadily climb so it has brought it down some. I know there are many types of dysautonomias but the only one I have found that does this is PAF but i'm not going there until I get insurance and a doc tells me that. but I would like your take on this if no one minds. i also was told I have SVT along with CVI and a bunch of stomach and temp and other issues if that helps.. another thing is that sometimes when i sit my Hr will drop to 40, but then there are times i could be sitting nothing bothering me and not watching anything stimulating or anything and my Hr jump to 95, and then there are times like once last nite i was sitting and my hr was 48 i stood up and it stayed at 48 no matter what i did to try to get it to go up it wouldn't so i just went to bed. so lol I have a Hr that just does whatever it wants- may be too low or too high sitting or standing. lol so any insight. and don't worry i am not just self diagnosing I just don't know when or if this insurance is going to be approved, and I would like to understand this a little better and i see there are some very well researched people on here. (some of you have already helped me some) so thank you bunches
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