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Found 4 results

  1. Hi Everyone, Just wanted to let everyone know that I've been using a slow juicer to juice tons of veggies and it has greatly increased my energy. I juice spinach, kale, cucumbers, celery, collard greens, asparagus (my favorite) I add tomatoes and baby carrots to counter the bitter taste. I also add green KYO Green powder that has wheat grass, barely grass and chorella. I drink about 24-32 oz of in the morning on an empty stomach and I don't eat anything until 90-120 minutes later. Sometimes I drink 16oz in the morning and 16oz around 3pm. It's doesn't help with my blood pooling but I'm not fatigued as quick. Because my energy is double sometimes I can over do it, forgetting about my blood pooling... Since I use a slow juicer called Omega VERT, I only have to juice once every 3 days because it stores in the refrig for up to 48 hours..
  2. Hello everyone, I hope you are feeling well today. I wanted to get some advice on how you all deal with your fatigue and how you get it under control. It is literally what is killing me with this whole POTS thing. I am copying and pasting from my last post, which was back when I posted my very first post and kind of disappeared after the fact due to just being scared and not being able to handle my diagnosis at the time. I apologized and thanked everyone who commented and welcomed me and the post is still there to read. So right now, I am hoping for your help on this issue. So, I am here asking a first of what may be many questions. I want to start with my fatigue; this is where my doctors are really beginning to frustrate me. My primary, neuro, and cardiologist know what I have, but I strongly believe they are not realizing exactly what I deal with on a day to day basis. They keep trying to come up with other reasons why I may be fatigued instead of realizing that POTS is why I am fatigued. My primary does not want to put me on anything that would affect my tachycardia, even though I am on betablockers that have my tachycardia under control. We have ruled out depression and thyroid problems, and since he does not want to put me on anything that would affect my tachycardia, he says there is nothing I Can do. Well, then I talked to my Neurologist. He wants to do a sleep study because he thinks That may be causing my fatigue! I am at my wits end, I could handle this so much better without this fatigue! I know I could. Does anyone have any suggestions or ideas? How are you all managing your fatigue? I am planning on going to a specialist soon, but in the meantime, is there anything I can do to convince these doctors to help me? BIG HUGS TO YOU ALL! & I hope your day is easy on you and that you are doing well. ♥ CC
  3. Do your symptoms get much, much worse when you're under an abnormally high amount of stress? My husband came down with meningitis last weekend and was hospitalized for the whole week. He was finally able to come home today, but just as he is getting better, I feel myself crashing in a big way. Food does not sound appealing at all, my headaches have gotten increasingly worse throughout the week, and I am incredibly tired despite sleeping reasonably well last night. I also have the shaky low-BP feeling I used to get a lot pre-diagnosis (and pre-medication). I've been keeping up a schedule that is a lot more strenuous than usual this week, staying up for 2 days straight in the ER, going back and forth to the ER/hospital and filling prescriptions etc. My normal schedule consists of getting 9+ hours of sleep (or at least laying around since I can't always fall asleep or stay asleep) and working from home about 25 hours a week. I tried eating some soup and toast this evening but I couldn't finish it. What do you find helpful for recovering after this kind of week? I haven't gone through anything this stressful since diagnosis and I just want to stay in bed with an ice pack across my forehead for the headache and watch movies until I feel like getting up, whenever that may be. Argh!
  4. Hello all - long time no see! Have checked through past posts and not found anything on this specific query: Does anyone else get weakness or fatigue or brainfog on desmopressin? I started it 4 days ago and am sleeping on average 12-14 hours a night, and feeling so weak that I am supine the rest of the time I am awake. I've just had a 2 week hospital stay following a UTI which caused a massive POTS flare. My hydration went wonky; no matter how much IV I had- even one day having 6 litres, I still peed it all out and went into 'negative fluid balance'. The desmopressin means I don't spend my entire time in the bathroom, but I feel REALLY weak. Hard to tell if it's because I was flat on my back in hospital for days on end, or the desmopressin. I think the desmopressin is doing something weird though because my brain is so fuzzy. Any feedback, suggestions, or experiences would be very welcome. Thank you all
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