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Found 1 result

  1. Long story, 6 months ago had tingling in hands and feet, muscle twitches and night sweats. Had a CT had anaphylaxis to CT contrast was biphasic, got too much epi went into vtach was in icu etc. Had ongoing rash, chest tightness, itching for months started on ketotifen, cromolyn, cetirizine, zantac, singulair which helped. Failed steroid taper after 3 months due to adrenal insuff (prednisone). Was switched to hydrocortisone but still failing tapers. Allergy symptoms improved. Started having tachycardia worst on standing. Tried florinef, had a fever and a flare of allergy symptoms.....was sent away for further investigations. Normal tryptase, urine histamine etc. Haven't had BMB. Allergy symptoms improved over 3 weeks but still have tachycardia---? pots and am on a slow steroid taper and hoping adrenals will recover. Interested in input. Realized POTS may be adrenal, mast cell, separate or a combo but interested in your input especially Julie/Mack's mom if you can! Still have tingling in hands and feet. Realizing not much is known about most of this and I'll have to do a lot of figuring on my own.
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