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  1. My MIL recently passed away & I've had the opportunity to spend some quality time with my husband's family members. I had always heard that one of my husband's first cousin's had a daughter, who is consistently described as "sickly." Well, she has almost identical symptoms and a diagnosis as my son. (They are 2nd cousins.) This sweet young lady has EDS, NMH, GI motility issues, and possibly MCAD. What are the chances??? I had always suspected that my husband had some of our stuff. He has VERY loose joints and has had several subluxatuions/dislocations. He does faint at the site of blood or
  2. This is a very good 2004 article from The CFIDS Chronicle written by Dr. Alan Pocinki discussing how Joint Hypermobility relates to Chronic Fatigue Syndrome (or CFIDS), Dysautonomia, Migraines, Irritable Bowel Syndrome, Interstitial Cystitis, Vulvodynia, etc. I searched the forum, but I didn't see this article previously posted. http://www.cfids.org...mer-feature.pdf
  3. Hi Everyone, I've been researching and researching non-stop and I've read through everyone's issues, every Dysautonomia website and it's all lead me to this post. I have a theory I'm working on and discussing with some Dysautonomia doctors. My theory only relates to our symptoms in a secondary nature because there are many primary causes and bundled all together it's causing different type of Dysautonomia. My theory unfortunately does not lead to a cure or even a cause but I believe it can help many of use with better treatment. My Theory: Our Dysautonomia symptoms are the result of imbalance
  4. Well I finally have a laptop again so can read & participate in this forum, have been out of the loop for a long time. Was in hospital for 9 months of 2011 dealing with pregnancy setting off my POTS in the extreme. Then I developed multiple DVTs/blood clots from a PICC line in my arm, a dozen pulmonary embolisms, and a clot in my heart. Sooooo....they had me basically on bed rest for 9 months. Only walking I did was a step or two to get to the bedside commode. My POTS was so bad that I was passing out constantly during the 2nd trimester, and my heart rate would go from 75 to 160 upon s
  5. Hello, all. I am a newbie and have had near syncope/syncope with BP bottomming out and tachycardia (which no longer happens when the BP plunges). I wanted to share that this was the most debilitating spring and summer and early fall in my whole life. I could not pull more than one or two weeds in flower bed when I'd have to run into house to AC and lie down. I could not walk into kitchen without things going black. If I would shower (and not hot water) I would either have to lay on bed in wet towel or finish up sitting on floor. I could wash clothes but by time I got clothes out of dryer and t
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