Dawg Tired

I always get up with my bones hurting, because laying down hurts. But then, so does standing up and sitting. But after I move around a bit the joint pain eases a bit. Then I drink my 2 cups of coffee, eat some toast w/ cream cheese, and IF I need to get out - I need to have it done and back home by 10 or 11 am... Because the day is all downhill from there.

I'll bet if you have a pacemaker you shouldn't wash dishes, cook or mop floors..... (Hey, it's worth a try, isn't it??)

I am so very, very sorry about this - I know how these tiny creatures can give us so much love. I know a giant empty space has been left.

We have WiFi and it has never affected my pacemaker. Okay.... I am horribly addicted to the Wireless!!

That is exactly why we moved from Montana to Missouri.

Same thing here - I figure Brain Fog??? LOL! I'll just make use of the transcript.

Regular periods starting at age 12. BCP from age 15 - 25. Periods painful from the start to the extent I actually started drinking for pain relief about age 14. My mother said the pain was "normal" So I thought it was. Age 18 I was told I "probably" had endometriosis. Had a miscarriage at 19. Ovarian cyst at 21 and through laparoscopy endometriosis confirmed. Miscarriages at 29, 30, 31. Had a live child at 32. Hysterectomy and bilateral oopherectomy at 36.... RELIEF!!! I woke up from surgery so much more pain-free than I had been in years. Pain relief was such that I took no pain meds for the surgery. On HRT (Estradiol) since. But CFS still there.

I take it as needed. I have the .25 tablets, sometimes I take 1/2 tablet and sometimes I need 2 tablets. My main need is this: When my heart starts going "THRUUMMMPPP THRRRUUUMMP thump thump thump THRRRRRUUUMMMPPPP" I just can't relax, then anxiety starts to add to the arrhythmia. Xanax is a central nervous system depressant. It allows me to relax and I can then go to sleep. Also - for some reason, now that I don't drive, riding in a car is excruciating. The anxiety is terrible and once it starts building, it just keeps getting worse, but if I take one before time to go, I am okay. Bad side effects? None I am aware of. It does make me WAY easier to live with.

It sounds like what we had to go through. Hubby and I applied at the same time - he had a head injury from 10 years earlier and had never applied - then when I got sick I kind of forced him to apply. So, yes, it sounds like what we went through. The paperwork was so bad, one of mu friends was kind of homeless - which was a blessing to us, as it turned out - so we moved her in to our home and SHE spent weeks dealing with everything. It seemed each step would just generate MORE paperwork. Took me from Sept, 2002 to March, 2005 to get it to go through.

OMG!! What a nightmare! I'm so sorry you are having to deal with this. Is the HHCA affiliated with a hospital, by chance? If so, your best recourse might be to go over their heads.

I clicked the second box, but that isn't quite right. The side effects were just too severe. After 4 days I stopped it. It did not help.

Exactly!!! It could, also, be that you are trying to the point where you are so worn out you might need some long-term rest before you can even start to try. At one point I wore myself out so bad I was literally bedridden for 5 months. I'm talking 5 months of needing help just making it from the bed to the bathroom. Right at the moment, Hubby got an elliptical exerciser - for himself mainly - and I tried it. I made it 15 seconds!!! Now, after 3 weeks, I am up to 1 minute - 3 times a week. I don't know if I will ever get above that. It sends my heart rate up to around 250. But I am trying. If this is it, so be it. I have had to remind my sisters of this: "normal" people have to do exercise to try to get their heart rate up to 125-130... Ours is like that most of the time if we are moving at all. Now, how would THEY feel if theirs did that??

I will probably have one today - shoulder problem. They have never bothered me - IF I have a very experienced doctor doing it. I had one who was not so good and I, too, ended up on the floor of the waiting room. The guy I am going to today has injected me several times and he's really good so I have no hesitation.

The number I quoted - 80% show negative test results but the gallbladder is the problem anyway - isn't something I pulled out of thin air. It is what our (insurance company) client base showed. So it's extremely common!

I'm an old medical insurance nurse... Let me tell you all - about 80% of the time, especially in women, ALL tests will be negative - and when they go in surgically there will be an enlarged, inflamed gallbladder. I saw it countless times. I wrestled with mine for 11 years on and off. Mainly because Ex-hubby would threaten dire consequences if I missed work for anything as piddly as surgery - it might affect his (non-working) lifestyle. I learned to drink apple juice by the quart. Then a couple years ago it flared up again and one day as I was drinking my umpteenth quart of apple juice it occurred to me, "HEY!! Rick (current hubby) doesn't want me hurting, he doesn't care if I lay around and do nothing. Why don't I get this taken care of?" So I went to my PCP - who has known me for a VERY long time and he said, "WHAT!?!?!? You still HAVE it??" He remembered the extreme amount of pain I had gone through several years ago and he had heard ex-husband cussing me. Once again I went through US, HIDA scan w/CCK and all was negative, but the surgeon was very understanding and agreed with me - most of the time the tests are negative and they don't mean anything. Besides - I fell within the "textbook gallbladder patient" parameters... the "4 F's" - Fair (a woman) Fat (hey, you already knew that one!) Forty (+) and Flatulent - yep, you have lots of gas! LOL!! So surgery was scheduled. Hubby was walking beside me on the way to surgery and one of the nurses said, "It's a good thing you are taking care of this, last year my dad's ruptured and he died." Poor hubby... He said, "WHAT?!?!? YOU CAN DIE?!?!? And you have been putting this OFF!?!?" Boy, was I GLAD they were putting me under! Poor guy. Sure enough, I had a grossly enlarged, inflamed gallbladder. Oh the relief!

I have wondered about it. I could oh-so-easily grow my own here. IF it were to relieve pain, keep me from being nauseated, AND help motility issues - I would do it. But I have really never heard how it would do for one of us.

*note to self... rent motel room for the 24-hour period before this...*

I'm on the DINET group and Hector & Callie belong to... (are you ready for this??) CATBOOK!! LOL! They are beautiful.

I'm an old nurse - I was working with a lot of other old nurses.... My boss DID NOT ACCEPT that it was in my head. I, myself ran into brick walls - my doctor even refused to refer me to a specialist because he was adamant it was in my head - but when I was too exhausted to go on, and Hubby was at a loss, it was my supervisor and the other nurses I worked with who help me upright and found the way to carry me through. Also - and most importantly - I knew Hubby was there beside me all the way. On days when he had to spoon soup into my mouth, or help me get to the bathroom, he never faltered.

I was extremely blessed. In April, 2002, I was having chill/sweat/dizzy cycles so I went to my doctor. He told me I had a virus and I would be over it in 10 days. 2 weeks later - same thing + fatigue so I went back to doctor. He again looked me over, and this time ran a few blood tests and told me I would be better in 10 days. I went from doctor's office back to work and on my way to my desk stopped in my boss's office and let her know what I was dealing with. At that time I was working for the insurance company who carri insurance. I knew my claims would cross her desk and I didn't want this to be a surprise to her. So when I fainted in my front yard, she had an idea something else was going on. My PCP then told me it was all in my head. Again - I was fortunate. One of the administrative assistants at work was married to an anesthesiologist and he was very curious about my case. When my doctor refused to refer me to a specialist, (insurance would cover - but no one would accept me without a referral!) the anesthesiologist himself called a local pulmonologist who was board certified in 4 specialties. HE gave me a thorough exam, ordered a TTT and diagnosed me. So it took from April to October of 2002.

I agree - get a lawyer! Even if it is a Legal Aid lawyer. At the end of the day, your ex-husband will look like a total jerk. He can't look any other way - taking children from their mother and leaving his sick wife high and dry AND putting you through a great deal of mental anguish which has very likely contributed to even MORE problems! GRRRR!!!!!! Let ME at him!!! After a 300-pound woman (that would be me!) faints on him, he will think twice about messing with one of US!

How are Wilbur and Moja doing?

It had happened to me too. So embarrassing!

My dad has a pacemaker and takes a baby aspirin a day - he has A-Fib. My mom has the same problem and a pacemaker and she uses Plavix. I have a pacemaker for Sick Sinus Syndrome and I do not take anything.

Good for you! I know it is ot easy to do, but you have ade an important first step - and that is the hardest thing to do.