kortnei

I take lexapro and I like it ok. I used to take Paxil (until it made my stomach hurt) and I loved it. Zoloft gives me a headache and Prozac makes me fall down (I literally lose my balance and fall, not sure what that is about). Elavil makes me hallucinate (really lucid ones that are quite funny, like taking all my friends to the bathroom with me when I am by myself..hey I didn't know it so what do I care). I don't know what else to tell you. I am leary of the stuff, but like I said lexapro isn't making anything worse. I am considering Cymbalta (heard it helps with pain too). Oh, I tried Lyrica (anti-depressant, anti-epileptic works on pain too). I HATED that stuff. I didn't know who I was for about 16 hours. Good luck. I know it isn't any fun to keep "trying" this junk.

Dear Tears, Not to get others here to hate me, but with the exception of neck pain during my last pregnancy, I feel incredible when I am pregnant. BP goes up to normal and the hormones seem to help me out quite a bit. I guess everyone is different. May you have a wonderful pregnancy! All my best!

Amby, I have had contact lenses just kinda jump out of my eyes. I cannot wear them...oh how they hurt my eyes. I hate wearing glasses...I don't think with EDS I am a canidate for laser surgery either. Talk to you soon.

I work full time too. I tele-commute 3 times a week since I live 70 miles from work (I love those days). I had a hard time last year after my gall bladder was removed and it took me about 1 1/2 months to get back to work instead of just 10 days but other than that I have done ok on meds. and continued to work without many problems. A flexible employer helps a million here.

Nina, I am 5 foot 9 inches tall so I hope that I can't touch the floor with my palms flat. I thought I was doing good to be able to touch my toes with 3 bulged disks in my lower back. I am gonna have to work on this. Take care, Kortnei

I have the cigarette paper and fish mouth scars. I am 33 and I can turn each foot 180 degrees (seperately of course or I would fall). I can pull my fingers back over 90 degrees. I can sit on the floor with both knees flat to the floor and lay flat on my back. I can stick my tongue out and touch my nose with it. I can cup both hands behind my back (like you are in handcuffs) and then extend my arms above my head. I too bruise from sitting on chairs that are too hard. I can't bend over and touch the floor with my palms flat though...go figure I have yet to be typed but I am banking that I have the same as Mighty Mouse. My uncle was a wrestler in high school and college and was "unpinnable" because he could dislocate his shoulders to get out of any pin. My dad recently had his shoulder bone replace from so many dislocations. Neither one was diagnosed with EDS, but I am going to gander that is where the gene came from. Seems like I maybe have full expression of it too...I will find out sometime in September. Take good care.

Dizzy Dame, Glad I could make you chuckle! Nice to meet you too. I have a few of your DX's also. Peripheral neuropathy and Fibro. I also have EDS so my husband keeps telling me to find people like me I should go to the circus Glad to find a friend on-line and not at the circus though. Sincerely, Kortnei

I too feel fine when walking...but when I stop walking the problems start. I will tell you too housework is hard for me because of all the bending and what not. It just wears me out very quickly. But hey I can walk away from the mess.

I have EDS so mine look funny in many ways. I wonder how many people with dysautonomia actually have EDS too and don't know it?

I took Buspar (not sure if I spelled that right) years ago. It helped. It did give me dry mouth though (which I hated because I already have dry mouth). But I stuck with it and that eventually went away. It made me tired to, so I took it at night.

I myself was just diagnosed with EDS (at 33 years old) by my dermatologist. I scheduled myself (at the advice of the dermatologist) to see a genetics doctor and genetics counselor to get it typed (I am pretty sure it's the hypermobility type, I can do the "tricks" too). I called my kids ped. and they told me to find out what kind I have and then let them know (since the kids would have the same type...if they have it of course). From what I can gather about EDS there is a 50% chance that you or your husband has it also and passed the gene along to your son. I wish I could advise you further, but I am just learning about this also. I would say to go to the pediatrician and find out whom they want you to see next (I would bet it will be a genetic counselor and a geneticist). I don't know of any in OH. I live in MD (sorry). I certainly feel your sons pain

Lynda, I had a gastric bypass in 1999, but I was having problems with low BP long before that surgery. Can you remember if you had any of the problems you have now before surgery? Take care of yourself, Courtney

Does anyone have neck pain or eye pain too?

I have lurked here quite a bit. My dx was originally orthostatic hypotension and MVP. Recently I went to a dermatologist for a routine skin cancer check and she told me (after a fairly extensive exam) that I have EDS also. My question: is EDS a known cause of orthostatic hypotension? Any help would be appreciated. I noticed that many of you on this board have EDS and probably know WAY more than I do since I just was diagnosed with that last week. Thanks for your help.