dizzydaze

Thank you so much to all who replied. I guess what I mean by head rush is a bit of head pressure too. Like an electricity/warmth sort of feeling. Its hard to stay calm and take note of the symtoms when it happens. I can just be sitting doing nothing and it can happen - this this happen to anyone? Does anybody know what the general course of this dysfunction is. Does it lead to more serious dysautonomia? Does it get worse or stay the same. Does it go away for some? What about hereditary - I hope I dont pass it on to any of my daughters. Does anyone drive with this sort of thing? I cant find much info on this.

Fairly new here and I need your opinions please. About 10 years ago I started getting 'head rush' and weak feeling after showering. So I used to lie down. A couple of times I actually fainted. The presyncope feelings developed into head rush, hot feeling, heart palpitations and feeling weak at anytime even when sitting. They would happen every couple of months and now happening once or twice a month - sometimes in clusters over a few days. Tends to happen alot around menstruation but not always. I have had Tilt table test, ecg, eeg, mri and seen a Neuorologist who said its syncope. All tests came back normal. Its NOT like a fainting feeling that is describe alot on the internet - greying out and such, no nausea or swooning. Sometimes its just the head rush and feeling very tired and goes after about a minute. Other times its a bit more overwhelming and I really need to lie down and the feelings go pretty quickly then. I may feel a bit headachey or tired for the rest of the day depending on how bad the 'spell' was. If I am sitting when it happens its not bad but if I am standing when it happens it is more intense. There does not seem to be a trigger. I have only actually fainted 2 or 3 times in the past 10 years. Please tell me what you think this is? If it is sycope - what is the proper name? Does this sort of thing progress? I cant find much information on what the prognosis is or long term future for this sort of thing. I am worried that this might turn into some sort of incapacitating illness. I am 42 years old non smoker, overweight and mother to 3 children who need me. I really appreciate any information you can give me, I am done looking things up on the internet and I wanted to go straight to real people for some help. Thanks again.

Hi My Neuro diagnosed POTS but the tilt table test said I dont. I feel I have all the symptoms, but I am in no-mans land now. My main symptom is the dizziness. I want to know how it compares with your dizziness. Please tell me: When do you get it - ie only when you stand up or stand up for too long? How long does it last for - ie only while you stand or only for a few seconds, then your body rights itself? How does it feel - ie does the room spin or is it a fuzziness inside your head? Do you get worse when in a busy environment - ie a shopping mall When DONT you get it - ie when sitting, or riding in the car, or lying down? Does stress or tiredness or certain foods make it worse? Being on the computer make it worse? When you move around - ie bend over, turn your head? Describe in as much detail as you can. Thanks

Hi. Neurologist says POTS - do the Tilt Test if you want but its not necessary. So yesterday I had the test done with results of increase of HR of 30BPM. But this neurologist who did the test thinks its just Orthostatic Intolerance because this increase only lasted a few minutes and did not last long enough to be POTS. Another Neuro also there at the test argued with him that because I have all of the symptoms of POTS that it must be POTS." But she does not meet the criteria as the symptoms did not last long enough" says the other Neuro. Please tell me what the difference is, in laymans terms, between POTS and Orthostatic Intolerance. I did not know that the symptoms had to last for a certain period of time (like 5 mins) before its considered POTS. I also asked him how long do I put up with this for. He said he has no patients older than 40 with it so it should be gone by then. I live in Australia and not much research is done here for POTS. Thanks

Hello. My husband and I will be trying to conceive another child soon and I worry how I might feel during and after pregnancy. I had mild symptoms of POTS (just the odd faint and heart palpitations) but since having my first child by c section the symtpoms have got worse ( constant dizziness and tiredness and nausea as well). What does research say about POTS and pregnancy and what were your experiences? I am an older mother (37) so I am behind the eight ball already. Is the POTS likely to get worse? Why does it get worse during pregnancy? Does it get better for some people? Is it just the sleep deprivation that triggers something? I see from some old forums that some of you were told "you cant have children" . Is that because of POTS doing something to your reproductive system or that you just wouldnt be able to cope? Please help. Thank you.

Hi I live in Australia and all I know about is a recent conference at the Australian Association of Neurologists Annual Scientific Meeting, where they studied 16 POTS patients and got a whole heap of data together. Is that the one?

Thank you all for your help. You all sound so nice and I hope I can ask a few more questions?? From looking at other threads/posts it seems alot of you have multiple diagnosis' for different illness. Does POTS lead to other illnesses or are we just suseptable because we are unwell? I am worried that my symptoms will get worse and lead to other things. What has been your experience as mine has got worse since the birth of my daughter. I seem to have a family history of POTS as my Mother and Grandmother and Aunt all have symptoms of POTS. I just hope my daughter doesnt get it. So.... Does POTS get worse. Does POTS go away on its own. How long do we have it for. Have you all tried alternate therapies as my Mother finds Homeopathy very helpful for her dizziness. How wonderful is it that we can get support from the other side of the world Keep strong.

Hello from Australia I have just been diagnosed with POTS and Syncope. Do you all mind if I rattle off with my symptoms? For about the past 4 or 5 years I have been experiencing strange seizure like activity after having a shower. I would be suddenly gripped by a strange feeling, an adrenaline rush and I would then start being unable to stand only to be relieved by lying down. I would also get a headache sometimes afterwards for a few days. Sometimes these symptoms would go on for a few days after the initial episode. This only happens every few weeks or every few months. Nine months after the birth of my daughter I started getting dizzy, dizzy, dizzy. Everyday dizzy on and off all day everyday. Tired ALL THE TIME. Have had heart palpitations for as long as I can remember. I have been to many doctors. Had MRI, 3 EEG's, ECG and vestibular physiotherapy. EEG showed up slight abnormality. So they diagnosed Epilepsy. On seeing another Neurologist she has said in her opinion it is POTS with Syncope and Pre Syncope. Have only fainted a few times but used to have bad Menstral episodes of blacking out and nausea, sweating aswell. The Syncope episodes now only seem to happen around "this time fo the month". I also suffer from panic attacks and anxiety. All of the symptoms are aggrivated by stress and lack of sleep. Even going to a shopping centre is an all out dizzy attack. If I get up too quickly sometimes I see black spots or get a bit of tunnel vision or a head rush. I am glad it is not Epilepsy, but now I am in the early stages of finding out about POTS. Do you all think this sounds like POTS? How will this effect me if I were to get pregnant again? Do you think this is POTS in a mild degree or moderate or whatever? How much salt do I need? The dizziness is like a fuzzy/dizzy and sometimes like a lightheadedness and sometimes like standing on a boat. It also happens while sitting down, is this because I am still upright and my body is still adjusting to getting up and down? One last question do any of you feel sick the instant you lie on your back, like a painful nausea. I can lie on my side, but not on my back. Thanks for any info you give as not too may docs have heard of this in Australia. All the best