HEIDYLYNN

Do you have any more updates on this? I was dianosed with NCS in 1998 and in 2010 Gitelman's Syndrome. The gene testing is not available in the US for Gitelman's but I was told this is what I have as they ruled everything else out. I am currently taking Spironolactone and potassium pills for it. I am wonder how these two conditions maybe related. Thanks for any help. (I also have Orthostatic Intolerance, IBS, Fibromyalgia, migraines, Lymphedemia and Lipedema) I wish I could find one reason for them all.

I also have NCS but have a lot of the symptoms of POTs. Like Sunfish posted that they are both forms of dysautonomia. Good Luck

A little over a month ago I was diagnosed with Fibromyalgia. My question is how do you manage both Fibromyalgia and NCS? Do any of you use water therapy or yoga? My Rheumatologists wants me to exersice with a heart rate at 145 beats per minute for 40 minutes a day which is impossible. I do walk almost everyday on a treadmill with a fan blowing on me but not that fast that I can get my heart rate up that high. I told the Dr. I didn't think I could do it without having problems. He said he didn't know anything about my other problems but didn't want to aggervate my other conditions. Also he does not want to give me any meds. which is kind of okay with me as I seem to take so many now. I do know I have to work on stress relief. I get myself too worked up to easy. I have a very stressful job (which I have had for 9 1/2 years) and they are going to be closing the business within the next month, which leads to another issue. I am stressed about trying to find another job which anybody would be but I am more worried because I am having difficulty concentrating and performing simple mental tasks. This is just not a little difficulty, with my NCS it was a little difficulty. Now with the Fibromyalgia added I wonder if I have any brain cells left, I can't remember anything. I feel so stupid! I have read that Mestinon is to help with cognitive problems and I am already on this for my NCS. Also I am very mood (which I have been in the past) but I also wonder if I am becoming depressed as I seem to cry alot. (I just wonder if it is that my life is very stressful right now?) I am in some sort of pain most of the time. So my questions What do you use to manage you Fibromyalgia? Water therapy, yoga or? What do you do for stress relief? What helps for cognitive problems? Anything you could tell me would help. Thank you. Heidy Diagnosed with NCS & Orthostatic Intolerance 1997 IBS 2000 Fibromyalgia 2007

I was wondering who do you go to about Fibroymalgia? Your GP? I don't have an appointment until June with Dr. Grubb. This sounds like how I have been feeling over the last few months. What test do they run to find out if you have this? I am going to try the bath to see if it helps. Is there anything else you can do for the pain? Thanks

I have had ache joints in the past but this far exceeds an ache! Both my shoulders, hips and right wrist hurt so bad in the morning that I can hardly stand it (my right side hurts more than my left). It started a few weeks ago as the day went on the pain would go away, now it just is easing up. Two months ago I had the same problem with my right big toe and then one day the pain basicly went away. My toe now aches every so often. The weather here in Northern Ohio has been very good for the end of December so I can't figure it out. Has anybody had this. I have also notice my memory has been worse then normal. I have been very stressed lately and I am sure that is not helping me as I know that makes me more symptomatic. However, it feels like somebody has tried to rip my arms off. thanks

I am also from ohio. On the lake between Toledo and Cleveland. Not far from Davis Bessie Nuclear Power Plant and Cedar Point. But I believe that my condition started after a very bad car accident. I also see Dr. Grubb. It is interesting that there are alot of us from the same regions.