Allerian

Hi, My name is Julia and I'm 23 and was diagnosed with Inappropiate Sinus Tachycardia/POTS last year. I also have Lupus, Hashimotos, Raynauds and a kidney disease that affects my electrolytes called Gitelmans. I have a lot of problems with my heart rate and exercising. I did a 24 holter moniter last year and the found my pulse stayed around 110, 180 with walking, and down to 60 at night. I also had a stress test. They had to stop the stress test because when my heart rate got up to 200 (within three minutes of starting) my blood pressure dropped below 80/50 and I got extremely dizzy. I also have pretty low blood pressure. Last week it was 99/66. My first electrophysiologist prescribed me florinef which my nephrologist forbids me to take. I can't take it because it makes you absorb sodium (good) but makes you urinate out more potassium. I have problems keeping my potassium high enough so florinef is not a drug I can take. I have tried gatorade and it doesn't alleviate the problem. Today, I went out walking it was humid and 75 and I had a really hard time. It's so frustrating because I used to be a runner and I do taekwondo. It's so hard now because I almost collapse every class. When I returned home from college, I had to consult with a new electrophysiologist informed me there was nothing he could do for me. Is that true? I am attending medical college this august and might get a second opinion? Does anyone know of good Electrophysiologists/Mds specializing in dysautonomia?