Shimoda

Florinef, at least for me, pointless. It really does little more, at least for me, than drinking a bottle of gatorade. It really seems to just be a glorified salt pill. It helps, but its no cure and only does a little to alleviate anything other than blood fluid retention. Just my opinion.

Hey...I'm new here. My name is Seth and I'm 17. Unfortunately, for my senior year, I'm not supposed to have any fun. I was diagnosed with Postural Orthostatic Tachycardia Syndrome (POTS) this past August. I have a terrible onslaught of symptoms that first occured after shoulder surgery in summer of 07. As of a week ago they believe I might have Arnold-Chiari Malformation of the brain stem as well.... I have pre-syncope and syncope symptoms countless times a day. I have non-stop visual snow which doesnt stop even when I close my eyes, so I can't go out in the dark or light. My blood pools heavily in my sleep and sometimes whilst awake. My head hurts all the time and I often have trouble breathing and moving. I am just so dreadfully tired all the time - I have quit all my extracurricular activites and have stopped playing hockey. I'm very out of it most of the day, and really am just sort of existing at this point. All I know is that I've been dealing with this for far too long...16/17 months at this point. I thought at first it was just me feeling badly after a surgery, but it has progressed to the point where I can't do anything. Sorry for the pity party but this blows. Any input would be helpful. : )