Jump to content

Shimoda

Members
  • Posts

    102
  • Joined

  • Last visited

Everything posted by Shimoda

  1. Every now and then my hands will shake pretty badly. It makes me stop whatever and try to get electrolytes and food in my system. Sleep also helps for some reason, as does running hot water over the area shaking. It used to be a lot worse when my symptoms first started though. I had to leave school cause the pencils would keep flying out of my hands. Those spasms were pretty vicious. Seems like you can chalk another symptom up to POTS.
  2. Welcome! I know it's scary. Just take it day by day. That's really all you can do. Sitting there and worrying about it, although tempting, doesn't help at all. Push your docs to give you meds or they never will. Most importantly, you have a wife to support you and if you want to talk feeling crappy you've definitely found the right place. What was it like being dead? Anything cool happen?
  3. Wow. I thought I had it rough. How you still are typing is beyond me. I'm sorry that you had such an unpleasant (to say the least) couple of weeks. Give your family my best wishes. Also, you're in no condition to be driving. There has to be some sort of driving services offered for disabilities, right?
  4. Thanks for all the support!!! Just an update. I talked to my parents about the depression and they didn't seem to get where I was coming from. Regardless, good news is I talked to my doc and we're gonna try changing some meds up. Let's hope that works.
  5. There are times in life where you need to smack-a-hoe. This was one of them.
  6. Yeah I haven't been able to upload mine either. "The upload failed. Please contact a board administrator."
  7. You guys rock. I came home and was in a pissy mood - your comments gave me an honest ear-to-ear smile. It's been a while, I needed one. Thanks for that. Maybe I should work on anti-depressants - I'm already on Effexor for POTS...I talked to my doc about Wellbutrin to be added but he said he wants to try beta-blockers first. (I said that it was for my POTS, it sort of is.) Thing is, I really havent talked to anyone about the depression, excluding you guys. Regardless, I REALLY needed the boost. Next time I feel crappy, I'll just check this page out. (Printed)
  8. Any chance you could just use a headset with no video feed...or do i need to dish out and get a videocam?
  9. Until then, best of luck. My thoughts are with you.
  10. I wore one for a week - every day after school. That was a while ago though...and was a COMPLETE waste of my precious time.
  11. That blows. I guess it comes with the territory. It sure is irritating though.
  12. I'm going to piss and moan a bit, because I need to, and because I can. I have grown entirely depressed. I find myself pushing others away more and more. Really, I don't seem to have any friends or family anymore as it seems that I've secluded myself from them for so long. It seems that I am more alone in the world every day. I want to go out and do things, but at the same time I know that if I do, I will end up being a disappointment or a liability for others. So I just sleep... It's very odd, no one seems to notice that I've effectively dropped off the face of the earth after being in the center of social life for years. Just guess other people don't seem to notice...or care. Guess that's what I deserve after being a tool to so many people. I'm basically a lame duck senior at this point...I'm just buying time until summer and college. Not really sure what will change when I go to college...just hoping I am forced into things again. I don't want to get emotionally attached to anyone, so I don't. I've stopped dating, and don't think I will for a while. If I do, I'll drag them down with me - not so much with my physical ailments, but moreso with my depressed persona. I have lost all faith in a higher power...and cannot seem to find any religion that seems to work with me. Nothing really makes sense anymore. It seems, to me, at least, that I have this one life to live to its fullest, and it seems I cannot do that. It's incredibly depressing. All I do is write personal insights onto countless scattered pieces of paper that litter my room. No one will probably ever read them. Things pretty much blow right now...even if no one reads this it makes me feel better to put this down somewhere...at least here my thoughts are accepted...I feel as though if I state my true feelings to family or friends they will think me suicidal or emo or what-have-you. I just need someone to talk to right now, and I don't have the luxury of that. The only person I count on is myself, but would be nice to have some help once in a while. I feel selfish and childish for ******** about my issues when other people are dying and have way worse problems than I do. I know I don't have the worst of things, and it feels I should be counting my blessings. Take it for what it is.
  13. Welcome to the site! The best advice I can give you is that Florinef is poopy. It's not worth the money and it does harm a lot of peoples' BPs, while I've heard of no one who has been miraculously cured by the med. My advice is to talk to your doctor about a safer and better treatment.
  14. I can say with OVER 100% certainty that repeated trauma caused my POTS. Broken arm, alergic reaction, arm surgery, and the lack of doing anything after the surgery all contributed to me feeling like a zombie less than a month post-op. I'm very sure that my body just couldn't handle the trauma. But that doesn't seem to be the case for most of you...interesting to say the least.
  15. Great....I have a female disease? (sad face) I feel less manly now. Oh well...for those who care I'm 5'11" and 130 lbs, but im only 17 and very much still growing. So I guess I don't fit the normal protocol.
  16. Wow. People can be such retards. I'm sorry you had to suffer for so long for no reason other than other peoples' complete incompetence. I know that the apology doesn't help much, so take it for what it's worth. My thoughts are with you!
  17. Yea I have that pooling too. What side were you sleeping on? Maybe you had severe pooling that in some way damaged your vessels.
  18. Just an update...the MRI results came back clean, so thankfully I don't have Chiari. I really have no idea where we go from here. My docs are reluctant to give me any sort of meds so I don't know where that leaves me. Apparently, I'm just supposed to will it away. Prayers, anyone?
  19. No...just thought I could help. How recent were your last MRI's? Maybe if this pain started after you took your last set, you might want to think about having them redone. Maybe something has changed since then; maybe not. Regardless, I'm really sorry for all the crap you're going through. I wish I could take your pain away, but unfortunately it doesn't work like that. Don't worry, things will get better. Best of luck with the new doc.
  20. Thanks again everyone. I'm kind of irritated because the doc didnt call me with the results. Still waiting...
  21. Best of luck. My thoughts are with you.
  22. My thoughts are with you. I think all of ours are. Good luck.
  23. Umm...now that you mention it, yeah, I was like 5'6" and went up to 5'11" or so...maybe hormone changes make one more succeptable.
  24. Thank you for all the support. It's nice to have other people to talk to who are going through the same crap that I am. Glad I found this site. : ) It's also pretty cool to know that 80% get better - thats definitely good news. It would be nice if I didn't have to deal with this for the rest of my days. Angela, I had a brain MRI this Saturday. Hopefully they come back negative, but we'll see. I should get the results tomorrow (Wednesday).
  25. From reading neurology crap and the fact that I see neurologists all the time....I know that one-sided pain can often be a sign of something wrong neurological. I would DEFINITELY get a brain MRI like I've had done. Please try this! At worst it wastes 30 minutes.
×
×
  • Create New...