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llp479

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  1. Have you tried contacting the manufacturer and seeing if they will help you? I'm in healthcare and many of the drug companies have programs to help people get the meds when their insurance won't pay for them, or because they no longer have healthcare benefits.
  2. ReliefBand is a watch like device that emits a small shock. It works great! I used it when we cruised, and use it anytime I feel nauseas. I wish I had had one when I was pregnant. They are about $80 and are available from numerous web sites.
  3. Have you ever tried putting ice on the back of your neck? This was suggested to me by my EP and it has helped me significantly. I even carry one of those snap ice packs in my car in case it happens while driving.
  4. I take 10mg of Zyrtec at night before bed daily. The regular Zyrtec is fine, but the Zyrtec-D contains pseudophed which as we all know send the heart and BP into overdrive Keep in mind, most antihistamines need to be taken for at least 5 consecutive days before you see any real improvement.
  5. The pain may be caused by your lymph nodes swelling as a reaction to the deodorant. I have many problems with lymph node swelling under my right arm. I have had some lymph nodes removed from my left, so for some reason they don't swell. I've found that taking an anti-inflamatory, like Motrin, or applying heat seems to help. Know what you mean about the pain, sometimes it is horrific. However, I can't find a link as to what causes them to swell. My MD says as long as they go back down, not to worry.
  6. I'm a health care consultant and the most important thing under HIPAA is to have CONTINUOUS coverage. Insurance carriers cannot invoke a pre-existing clause if you have had contiunous coverage and are applying under group coverage through an employer. If you have not had continuous coverage, under a group policy they have to insure you, but can refuse to pay for a pre-existing condition for one year. If you are applying as an individual, they can refuse to insure you, and believe me they do. My mother was denied because she had been recently diagnosed with slightly elevated BP. They told her to apply one year after she had been diagnosed, and could prove she had had no ill effects from the diagnosis.
  7. 1. Laura 2. 41 3. POTS 4. 39 5. Northern IL 6. Tachycardia, high BP, shortness of breath, IBS, lymph node swelling, chest pain 7. Vertigo, lymph node pain and swelling, IBS, episodes of tachycardia, chest pain 8. BETA BLOCKERS - almost killed me - literally! 9. Micardis 40 mg for BP - cold pack on back of neck helps to lower HR, 32 - 64 oz of water daily, Immodium and Prevacid as needed. I have found great comfort in having a diagnosis. Instead of freaking out about some strange symptom, I chalk it up to POTS and keep going. I refuse to let this thing get the best of me!
  8. I have high BP with POTS. My EP, Marcie Berger, is out of Milwaukee and she is very knowledgable when it come to the disease. High BP can cause headaches, and in some cases shortness of breath. Good luck to you!
  9. Have you tried putting an ice pack on the back of your neck? This helps me when things are really bad. I even keep one of those "snap" ice packs in the car in case something happens while driving. Another thing that helps is singing. Sounds crazy, I know, but it has to do with how you breath while you sing. My EP suggested this, and darned if it doesn't help. I know how tough it is to hang in there when you feel lousy. I've got three kids, 10, 10, and 7, and some mornings getting everyone out the door and me to work is enough to put me over the edge. So, I slap an ice pack on my neck, and sing my heart out on the way to work! Hang in there!
  10. Elevators, air planes, cars, you name it. Anything with motion gives me vertigo. Some days are worse than others. I've found putting something cold on the back of my neck seems to help. I keep one of those snap ice packs in my car just in case it gets too bad.
  11. Thanks for the info. I guess I'll see what happens. I took it once a very long time ago, and had no adverse reaction, but that was in my pre-POTS life.
  12. I've recently started having migraines again. Was at the MD yesterday and he rather reluctantly gave me a sample of Imitrex to try. To quote - "Not sure how your body will react to this". A reasuring statement don't you think? I've taken Fiorinal in the past, but with the caffeine in it I'm reluctant to start it again. I eliminated all caffeine from my diet two years ago when I was diagnosed with POTS. Has any one ever taken this or what do you take? Any side effecs? By the way, I reacted quite severly to beta blockers. MD advised me never to take them again or I could die. TIA Laura
  13. I've had high BP from the start of all of this. I take 40 mgs of Micardis to keep it under control. My EP said it is caused by the POTS. Beta blockers made it worse, and midodrine sent it through the roof!
  14. It may be the removal of the beta blocker. Keep in mind they treat high BP with beta blockers. My BP is all over as well, however usually on the high end. I actually take Micardis to keep in under control.
  15. Me too! "Normal" for me is around 97.6F. When it gets to around 99 I'm feeling really crummy.
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