Sorry to hear that you've had such a run like that. Is this what you have? http://www.emedicine.com/neuro/TOPIC308.HTM You don't sound like an angry hag as you put it, you sound frustrated with the medical system and how you've been treated in general by them trying to find out what is wrong with you. I think this is a perfectly normal response in this situation by someone. I've seen people go from calm to angry in less of a situation so I can imagine I wouldn't expect any less from myself if my whole life was a challange while battling professionals trying to get answers at the same time. Now that you've been diagnosed with further investigation with a problem like this, do you see any specialist(s) who deal with this type of problem? It sounds like maybe your primary doctor is just not equiped with the knowledge or energy to deal with this type of thing and what it requires and you need to see someone who has the knowledge for this type of problem. Have you contacted the support group pertaining to this problem for help? I'm sure you've done everything possible, I'm just asking. I read a board on what is listed above and numerous people on there stated they've also had terrible problems during diagnosis or having great difficulties getting one spite testing being done. I think when it's not the mainstream illness, some of the professionals just don't have the time, knowledge or energy due to patient overload to deal with things properly. Best wishes and hope things improve for you soon.