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sally's Achievements


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  1. Just wanted to say Hi. Hope your new physician gets to the bottom of what's going on. That other doctor that said Pots was an emotional disorder really needs to be educated on dysautonomia. I also feel badly for the other patients he has probably said this to that believed him and didn't look further for answers. Good luck and hope you find answers soon.
  2. I'm glad you found a keeper. Hope your return visit goes well and she is able to help you feel better. It sounds like she will be very helpful.
  3. Try to look into Medicaid. Depending on where you are located, they may cover you due to this situation. I don't know if you are able to look into Cobra from your previous employer.... but usually Cobra is very costly. good luck
  4. We get that feeling alot. My girls & I call it our "heavy gravity day" when we bothered by it.
  5. That's wonderful! Your efforts are greatly appreciated! Thank you for your time.
  6. The name you almost chose is too funny! Although, the name you did choose is cute also. We have a cat named nuisance and and a dog named Pita (acronym). Love your creativity.
  7. Good luck with your new medication, I hope it works well for you.
  8. I would put a phone call into the emergency phone number and let the doctor call you back on this before I would take another one, especially since your throat felt tight and had a bp drop. Or just don't take it again until you speak with the doctor on Monday if you feel more comfortable with that depending on your situation.
  9. If you haven't already seen this take a look, it has some interesting information you may find helpful. From what I read on a foundation site is that any flux in potassium would cause a problem in people with this problem but didn't state a quanitity of drop or increase. That is definetly a problem having something that is rare, there is not enough information and physicians that treat or understand what is going on within this person with a rare disorder or illness. Keep searching for another doctor online that deals with type of problem that can see you more often when needed and dump the doctor when you can that causes you the grief because it sounds like you'll never convince him no matter what you do or say and he sounds like he is certainly not worth the energy. Best wishes to you and hope you find answers and solutions real soon. Many blessings sent your way. http://periodicparalysis.blogspot.com/2005...-in-pubmed.html http://www.periodicparalysis.org/PPA/Physi...B_SECTION_ID=28 And, hey don't appologize for venting.....people need sounding boards...
  10. Sorry to hear that you've had such a run like that. Is this what you have? http://www.emedicine.com/neuro/TOPIC308.HTM You don't sound like an angry hag as you put it, you sound frustrated with the medical system and how you've been treated in general by them trying to find out what is wrong with you. I think this is a perfectly normal response in this situation by someone. I've seen people go from calm to angry in less of a situation so I can imagine I wouldn't expect any less from myself if my whole life was a challange while battling professionals trying to get answers at the same time. Now that you've been diagnosed with further investigation with a problem like this, do you see any specialist(s) who deal with this type of problem? It sounds like maybe your primary doctor is just not equiped with the knowledge or energy to deal with this type of thing and what it requires and you need to see someone who has the knowledge for this type of problem. Have you contacted the support group pertaining to this problem for help? I'm sure you've done everything possible, I'm just asking. I read a board on what is listed above and numerous people on there stated they've also had terrible problems during diagnosis or having great difficulties getting one spite testing being done. I think when it's not the mainstream illness, some of the professionals just don't have the time, knowledge or energy due to patient overload to deal with things properly. Best wishes and hope things improve for you soon.
  11. Hi Ernie, check out http://www.helpforibs.com I went on this forum for some help in answering questions regarding UC but it's an IBS forum that has a little of everything on it. good ideas and diet things included on there. good luck and feel better soon.
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