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gertieD

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    Reading,Flower Gardening(not so much anymore sadly)Tractor Pulling,Spending time with Nieces and Nephews, different crafts

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  1. I am sooo sorry to hear about your experience. It sounds like you are having a very difficult time. I have also had bad experiences at the ER. One trip they actually said I was just having Anxiety!! I was so weak that I was laying on the bed not moving, not able to hardly speak. I was definately not having anxiety. The Doctor did not even know what POTS was! I also suggest that you take someone with you. They are able to speak for you and really push the doctors to do something... It sounds like the ER's all over have the same problem. I hope you are able to get some assistance today. Feel better. Cindy
  2. I am so happy that I found this post. This symptom is one of the things that scares me the most. When I describe it to the docs. they just stare at me. It happens pretty often. I can hear people talking to me but I cannot answer them. It's like I'm just floating around inside and my body is immobile. Just a shell lying there. It is soooo scary. I'm glad to hear it is not just me. You have been a great help to this newbie. countrygirl
  3. [size=5 Hi,] I am a brand new user to the site, so I am not really sure what I am doing!! I am a patient of Dr. Grubb's. I just had an appointment with his NP Bev on Thursday. She suggested that I make a post on the site to get some help finding a Rheumatologist. I was diagnosed with POTS in 2004 and underlying Joint Hypermobility Syndrome in 2006. Dr. Grubb wants me to see a Rheumatologist but I need to find one that deals with autonomic disorders. I am in Central Ohio, but am willing to travel most anywhere in Ohio. Any help you can offer is most appreciated. Thank You. Dee
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