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splecu

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  1. The beach is truly the best place to forget about it all! People ask me "how do you go to the beach in the summer and make it through?"... Its something about being at the beach that makes you relax enough to forget about POTS and try to have fun. Maybe its the breeze off the ocean or the cold water or just the peacefulness but thats the one place I can go each year and actually enjoy myself! If I have POTS issues, so be it... at least I'm at the beach! What a neat post... Unfortunately with 3 little ones, date nights are rare in our house but these are fun ideas when we do get back to that stage!
  2. The not driving thing is such a hard part of having POTS. One day you have all this freedom and then you get sick with some weird thing like POTS and your life is no longer your own! My husband is in food sales so he drives all day long- the last thing he wants to do when he gets home is take me out and about. I hate having to ruin someone elses day by asking them to come take me shopping or just riding around! I'm not sure if I'll ever drive again which is a very hard thing to live with! I haven't driven since last May and I certainly am missing it. Its hard to be dependent on others to just take you to run a quick errand. My husband does all the shopping and carts our kids everywhere. He's been a lifesaver! I would even ride a bike to go somewhere if my body wouldn't give out before I got to my destination!!! As tempted as we all are to drive, the important thing is to stay safe. Even if my dr.s said it was ok to drive, my husband would never let me until I had gone a very long time without any episodes. Good Luck and BE SAFE!!!!!!!
  3. Dayna, I can totally feel your pain. I have 3 small boys ages 5, 3 and 3 months. I can't do too much playing with them either and it tears me up to have to tell them "mommy doesn't feel good right now" because I don't want them to think its just an excuse not to play monster trucks! I have this new baby and I can't even carry him around b/c I'm afraid of falling down. Its sad when my boys have to say "mommy, are you going to fall out". My 3 year old thinks the hospital across the street is my hospital because hes had to come see me there so many times. It is aggravating when people don't understand and most of them don't. My family gets it and my close friends that I spend alot of time with somewhat get it but unless you really experience it, you can't understand what it feels like. I can't explain to somebody what a "POTS Day" is- only that I feel like crud and can't get out of bed on those days. At least the people on this forum understand and it helps to have this arena to vent. Good Luck and keep your head up- the one thing with this condition is there are good days and bad days and we just have to find ways to get through the bad. I like to sleep through the bad days when I can- I hate to sleep my life away but at least when I can do that, I don't have to think about how bad I feel or have a pity party for myself! Take care....
  4. Hi Katie- My POTS symptoms developed 4 months after my 2nd son was born. I just delivered my 3rd son in January! The pregnancy was ok for the most part, up until my 8th month. I started having passing out spells Thanksgiving Day and had 9 more by Christmas. I felt really rough those last couple of months with lots of POTS symptoms. I was treated as high risk and saw a perinatal specialist the whole time. I was doing pretty good after delivery because I was lying down and resting most of the time (that is, when the baby was sleeping!) Once I was good and recovered and started to resume normal activity around the house, I started having passing out spells again and my symptoms kicked back in. I don't think any doctors really know what to do during pregnancy because for the most part, they don't understand POTS... especially the OBGYN's. They have NO IDEA what POTS is or how it affects us. They chose the c-section route for me so that they could control it from the beginning and so that the delivery would be short. They didn't want to risk me going into labor on my own as they didn't know how it would affect my body and heart rate / blood pressure. It worked well as it was over quickly and the anesthesiologist was very up to speed on my condition and he kept a close eye on everything during the whole procedure. Fortunately I had no issues during delivery that needed any attention. I guess we're all different with our symptoms and how we feel but this was the way that worked best for me and we have our 3rd healthy baby boy! Good Luck!!!!!!!!! Susie
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