theresa

this drug is popular in Mexico but is not real popular in the US but, is found here with few companies. they claim the following Here is how Immunocal works: ? The bonded cysteine found in Immunocal is the secret behind its beneficial properties ? Bonded cysteine is a building block for glutathione, which is a naturally-occurring protein in our bodies ? Glutathione is an essential component of our immune system ? In fact glutathione, produced by cells throughout our body, plays a vital role as: ? A cell's most important Antioxidant ? A component of the Immune response ? A Detoxifying agent in our body I know: Cysteine can be found in red peppers, garlic, onions, broccoli, brussel sprouts, oats, and wheat germ. However, it is not an essential amino acid, and can be synthesized by the human body if a sufficient quantity of methionine is available. Glutathione is manufactured inside your cells, your cells ability to make glutathione is determined by the supply of raw materials, in particular the amino acid, cysteine. So I'm no doctor but would it not make sense to eat food that has cysteine in it than to take this synthetic supplement that has it and god knows what else to boost your immune system. I in no way want to tell you what to take or not to take but i would research any supplements that heathfood companies are selling. It is know in the U.S that alot of money is wasted on these kinds of things. again this is just my opinion. theresa

jaquirouin, Yes I do have Immunodeficiency, just found out a little over a week ago, I kept getting sick all the time even after taking antibiotics I would get sick again. Sinus, lung, stomach infections over and over. trouble healing after big surgeries ect.... my doctor told me he did'nt think it was an immune problem. but now i have a bone infection and getting surgery on the 4th to dig the infection out of the bone because antibiotics would not help. I made an appt with a immunologist and got a blood test to see what was going on and found out i have a primary immune deficiency i will need IVIG treatments for the rest of my life to help me get over the infections. you should seek out this kind of doctor if your getting lots of infections. I just thought my immune system was weak i never thought he would tell me i had an deficiency that required treatment. I'm glad i did'nt listen to my doctor and looked into it further for myself. for more information on this go to http://www.primaryimmune.org/ good luck what ever you choose to do and i hope you feel better. theresa

I had the same symptoms as you before my Hysterectomy. I had a prolapsed uterus. Have you been to the gynecologist?

Does anyone have any immune disorders and get treatment for it with intravenous plasma?? If so can you tell me how this helps and is it worth it to sit for 4-6 hours for this every month?? also can some immune disorders make an infection turn into osteomyelitis? Not sure this whole immune thing is confusing to me when you get to looking at it and all this igg, igm, iga stuff. Did'nt know if someone here has been around the block with this and could tell me more.

I wish I could help you, but I don't know any, but I sure do know a few not to go to!! I live close to Mansfield. You can pm me if want. I dont think neurology as a whole is making any real effort to dig into the whole POTS thing. The only profession I've found to treat it is Cardiology. I've found neurosurgery to be very interested in it but if someone is'nt physicaly broke they can't fix it. Alot of narrow minded "God complex" neurologists will tell you its anxiety or a migrain. I had one tell me that Cleveland Clinic was a bunch of rich kids with new toys and they make up stuff so they can get funded to keep playing with them. He flat out said POTS, FM, and CFS was a bunch of crap and I should spend my money on a psychiatrist. Anyone living around here I'll be happy to tell you what dr's to save your money and time on.

This whole thing has taken me on an emotional whirlwind. I was one to fight the down time, I'm a person who does for others and not myself and its hard to take time to rest. But maybe thats why when I'm down it takes months to feel like I can get up again. I've spent the last 5 years trying to accept it and just can't seem to find that even-keel. I think sometimes I'm more hard on myself than the illness is. The anger clouds my judgement, while everyone normal bounces around me I just sit there and think "God, pain is a lonly thing"

you guys are a hoot i read these posts and realized i have'nt found anything funny in a long time but the next time i have this problem i will think of the stuff i read on here.

I'm glad to hear good news now i have to go tell the family were moving to Western North Carolina Mountains theresa

I just wanted to say i know how you feel, i'm in the same boat you are. i feel like i'm in the middle of the ocean and every lifeguard that comes along has no room on their boat to take me to shore and as hard as i try i can't find land. this forum has thrown me a lifesaver to hold onto and everyone has been so nice to me. I know how easy it is to want to put up that white flag and give up. Just mentioning the word Disabilaty scares doctors off. Its hard enough to get it but harder for a doctor to file for you on something they cant understand. I hope you find a better doctor. I dont live that way but my prayers are with you. as far as i'm concerned that doctor is a jerk. theresa

i just noticed you state you have spinal stenosis, can i ask, have you had any decompression surgery for this? the reason i ask is my p.o.t.s is caused by postural venous pooling that causes postural diastolic hypotension and i have low blood volume. but after my decompression i was able to get off the betta-blocker because one part of where the spine was compressed was affecting the bp and heart rate. my heart rate would drop from 80 to 55 just bending my head back. i get severe pressure in the back of my head and in my eyes. i still get drops and rises in bp and heart rate but not as severe.

when i called mayo clinic they told me there is a 90 day waiting list and would have me see a general doctor who would advd. me what dept. or depts to see. they said if my neuro-surgern would call for me i could poss. get in quicker. but if i don't get an appt. in 90 days then my doctor would have to call again and put me back on the 90 day wait list. i think cus i called they would not make appt with a doctor that treats dysautonomia problems, maybe my doc can rq that for me. i'll call him monday. i'm afraid to tell them i think a hosp in ohio caused my problems, some doctors wont go against another ones but i had a neuro in chicago tell me that the surgery i had years ago caused my spine to collapse and the cutting and removing some gangla caused surgery induced autonomic failure. that hosp has lost my records and will only give limited info to my doctors as to what they did. that same hosp dx me with pots but when the subject of my surgery came up i was advd that was not the problem and even noted on my chart under pt's history "no surgery". Some doctors don't want involved in a lawsuit but i had a neuro-surgen out of state document it and a lawyer told me the statue of limitations ran out years ago and would not take my case. right now i could care less just want an honest doctor help me get better or at least deal with the problem. the doctor in Chicago did the decompression surgery, my new neuro in ohio wants me to go to the mayo clinic says this is a very complex and interesting case. At first all i had was just a cluster of "symptoms" untill now i have a lesion on my brain, spleen and small granuloma's in lungs, posstive ana, abnormal emg, eeg. and no answers. thanks for all the posts

Hi julie, I know how frustrating it can be trying to find lab values, I am not a doctor, just looking up info for you don't know if this will help or not. BSA:The cardiac index is an adjustment of the cardiac output based on the size of the person?s body. It is the most and individualized cardiac parameter that the nurse can use. It is based on body surface area (BSA). The formula for calculating cardiac index is CI= CO/BSA. The normal value for this parameter is 2.5 to 4L/min/m2 BPM: Normally the heart rate should the 60 to 100 beats per minute. Any rate greater than 120 beats per minute results in decreased cardiac output as a result of the decreased ventricular filling time. Dysrhythmias result in a decrease cardiac output due to a loss of synchronization of atrial and ventricular filling and injection. Bradycardia, that is a heart rate less than 60 beats per minute was the hgb a blood test? HEMOGLOBIN Hgb (Male) 14 - 18 g/dL Hgb (Female) 11 - 16 g/dL Hgb (Child) 10 - 14 g/dL Hgb (Newborn) 15 - 25 g/dL not sure if this will help?? HEMODYNAMIC PARAMETERS cardiac index 2.5 - 4.2 L / min / m2 cardiac output 4 - 8 LPM left ventricular stroke work index 40 - 70 g / m2 / beat right ventricular stroke work index 7 - 12 g / m2 / beat mean arterial pressure 70 - 105 mm Hg pulmonary vascular resistance 155 - 255 dynes / sec / cm to the negative 5 pulmonary vascular resistance index 255 - 285 dynes / sec / cm to the negative 5 stroke volume 60 - 100 mL / beat stroke volume index 40 - 85 mL / m2 / beat systemic vascular resistance 900 - 1600 dynes / sec / cm to the negative 5 systemic vascular resistance index 1970 - 2390 dynes / sec / cm to the negative 5 systolic arterial pressure 90 - 140 mm Hg diastolic arterial pressure 60 - 90 mm Hg central venous pressure 2 - 6 mm Hg; 2.5 - 12 cm H2O ejection fraction 60 - 75% left arterial pressure 4 - 12 mm Hg right atrial pressure 4 - 6 mm Hg pulmonary artery systolic 15 - 30 mm Hg pulmonary artery diastolic 5 - 15 mm Hg pulmonary artery pressure 10 - 20 mm Hg pulmonary artery wedge pressure 4 - 12 mm Hg pulmonary artery end diastolic pressure 8 - 10 mm Hg right ventricular end diastolic pressure 0 - 8 mm Hg

Hi lulu, thanks for replying. I see your from Ohio, me too.

Has anyone been to the mayo clinic to see the neuro's that take care of dysautonomia problems? I need to go and was wandering what other pt's experience there has been. I would be traveling out of state and have little faith in the medical field are they as good as they put off to be?