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ellen

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Everything posted by ellen

  1. This is my first post although I have been reading here for months. I was finally diagnosed with POTS last summer but have been on Florinef for 8 years. I had a virus 14 years ago that resulted in CFS( undiagnosed), asthma, allergies, low thyroid, fainting, etc. The good news, is I am very much recovered and live an almost normal life (if I don't forget to take my meds), but still have ups and downs. I can identify with so many of you who have searched for a doctor who understands this illness. My biggest problem when I am feeling "potsy" is brain fog, which made it very difficult to explain the very illness I was trying to describe! So I am so grateful for this website and you posters who express so clearly so much of what I've been experiencing.
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