Hello Simon, I?ve also had many episodes or syncopes when exercising, for me it seems it just makes symptoms like tachycardia or palpitations worse, even days after doing just a light training. And also when going to sleep or lie down I get sometimes palpitations, feels like the heart beats once very strong, then stops for a few seconds and skips beats, so shortly it can take the breath away. But usually it?s over after a few minutes. In your case it sounds very severe, my doctor also talked about an event recorder a few times, maybe it would be very helpful for you. Because the normal ECG or holter register a too short period of time. And with your symptoms I guess it would apply. The last years I?ve been in Hong Kong several months and had really bad syncopes there, and spent many days in hospitals. The problem was as you mentioned, the doctors didn?t know POTS or NCS and so always treated me e.g. for the irregular heart beat or a high fever (I got there as well, but they couldn?t figure out where it came from). All they did was more or less cardiologic. But one cardiologist once asked me if my doctor told me a website or something written that explains the problem I tried to describe him. He said he?s never heard of it, but wants to read it (he said it?s easier for him to understand when it?s written, because his English is not that good). So I told him there?s a lot at potsplace.com and he printed it immediately and worked through it until the next day. He even wanted to exchange e-mails with my home doctor to make sure of the further treatment. Perhaps you could try that or if nothing works ask a friend to translate (my friends did that several times in emergencies, when they were with me - and it worked). All the best. Hope you can get better soon!!
