hcyaquatic

Thank You all so much for your replies. Being able to chat with others makes it so much easier.

Hi all, I have been searching for books forever. I know some of you see dr Grubb. A friend of mine lent me a book called the Fainting Phenomenon by Dr. Grubbs. Its actually a good read. Another book is Handbook of the Autonomic Nervous System in Health & Disease. Author is Marcel Dekker. There are also some medical articles by Icon Health Publications & Oxford University. I hope this helped some. They might be things you already knew about. I have not been able to find much of anything based solely on POTS, but the book by Grubbs talks about all of it. JEN

HI I am an Aquatic Director at the YMCA. Water walking in chest deep water with water bars is good exercise. If there is a warm water therapy pool in your area, try taking a Arthritis class. It is low impact exercise. I teach it Tues & Thurs afternoons & usually feel pretty descent afterwards. Just do stuff at your own pace until you build up to more. Most Y's have a scholarship program if its a medical or financial issue. My doc recently told me that building up our calf muscles would help the blood from pooling in our legs as much. Has anyone else heard? Have a great day! JEN

If I had to choose just one symptom it would have to be the fatigue. Someone else said it. I WANT TO SHOP without passing out in line. or swim laps without feeling completely wasted. a close second would be my syncope. JEN

Lynda, Girl you just said it all. I hate that we are all going through this, but its nice to know someone out there knows how you feel. Family is great & supportive but we only know whats really going on & I have only ben using this forum for a week now & chatting with all of you makes my day alittle easier.

Good morning all, I hear everyone talking about this Dr. Grubb who is he? where is he??

I feel for ya. Being called lazy for the last 15years doesn't make ya feel good. Now they tell me about NCS & POTS. My daughter looks at me with a look like she wishes she had a better mom. Since I had my last baby my syptoms have gotten much worse. Doc pulled my license. So now my husband does all the housework, takes me & the kids to work & daycare. & he says "honey it's fine, we will handle it" that makes me want to scream. He tries so hard & does such a great job & All i can do is sit on my fanny hoping to have a descent day to spend with my family by that time he is exhausted from doing everything else. lol Q? I know brain fog is associated with this mess. How about memory loss or early stages of dementia? mine goes alot farther than brain fog. I lost my license because I didn't know where I was(few blocks from home) & I began to feel lightheaded & ran off the road. Killed my Jeep!!! But no one was hurt thank GOD!!! JEN

hi, Yeah I have had the tilt table, echo, eeg, event loop recorder etc... Defintely NCS. I have 2 docs one says yes I have both one says only NCS. Who knows. I have tried hose but I am an Aquatics Director at the YMCA and it is very warm in my area making it hard to wear them here. Doc says I need to find new job. due to what i do daily. Also pulled my license. which stinks. The midodrine makes me feel weird does it to anyone else? I have a BP monitor at home & I checked my daughters it was borderline. when I go back to doc 2/6 I will ask him about it. Have any of you been to Cleveland Clinic & if so who do you see. Jen

Hi all, I have had syptoms since I was 15 (Im 30)& not one doc could explain why. I met a lady who had exactly what I was going through & she told me a doc to see. Since then I have been told it is NCS only by one doc & NCS & POTS by another. I also have arrithmias. My BP is 75/58 on a good day with HR 120+. I started taking Midodrine 10mg 2x's a day about a month ago. but I still feel lousy. My doc says that he may pull my license until its under control. Which stinks because I work FT. My husband already does everything & now he may have to take me to work. Any one have suggestions on what works best and by my symptoms whether it is just NCS or both. Also has anyone done clinical research. I was told there was a study about to start at Vanderbilt. Is it worth going to. Next Q. I have read a few of your forums about genetics. I have a six year old daughter that has been sick for months & no one knows why. Since I found out what is going on with me could she have signs this early. Since August she has run a ongoing fever of 100.5 or higher, stomach aches, dizziness, contiuous fatigue. During recess at school she goes to the nurses station because she doesn't want to play. The school calls me at least 1 a week. & docs don't know what else to do. They have done blood work, cat scans, but nothing comes of it. Jen