logomotion

This sounds very familiar. My 16 yr. old began dispalying the same symptoms but also with alot of unexplained gastrointesinal symptoms. She went undiagnosed officially for almost 3 years, even though I decided it was POTS after about 6 months. Her Pediatrician agreed after the on slaught of web sites I started sending her on POTS, Oi, etc. After testing negative for mono 3 times, she tested positive in the ER. During those 3 yrs she had a negative TTT, which I disagreed with the Cardiologist and Nurse on their findings as they did not listen to her history. Through persistance last year we finally saw Dr. Hasan Abdullah, Pediatric Cardiologist, in Sterling VA who through an echo while laying prone and also while standing upright, with the computerized TTT diagnosed her with POTS. What I learned along the way was that no one payed any attention to her BP and Pulse Rate. Once I started tracking this in additon to her other symptoms I had more concrete data to show the Doctors. Good Luck!