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maryhelen

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  1. today my favorite patient, 12 year old boy, was diagnosed with POTS, we are all very happy as I work at a major university and this child is a joy to everyone. His entire family is delightful. I am an end tech and have witness his episodes many times. He can actually turn his head a certain way and pass out. He and his mom describe the floor coverings in their home because of how often he falls to the floor. Whenever I see him at the hospital he is wheelchair bound. I have seen his NCS events and his events involving major brainwave changes on monitor. The family always brings the staff treats and we appreciate them but he gives us so much joy, we should give him the treats. I realize that this is just the begining of a long hard road for him, but today I'm so thankful that he finally will have the recognition that he deserves. I will be informing his mom of the discovery of this website. I hope that he will get the help he needs to inable him to live somewhat of a normal life, like go to school and interact with children. As now he is somewhat limited to having other students assigned to assist him. He is really funny and if the physcians magage this well he'll be able to enjoy middle school. He suffers a lot of anxiety and it weighs heavy on my mind. It is interesting to me how well he has been describing his symptoms and we're just catching on. thanks, lovethatkid
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