Wufflebear

recliners or maybe footstools?? Interesting magazines. Water or juice in the waiting room along with crackers or something like that. Lots of natural light (not florescent.)

When I was pregnant I had problems with pain too...in legs but mosty my hips.We had a bathtub/shower, so I would turn on the shower on hot/real warm and then open the window. I would lie down in the bathtub but not let it fill. That let the hot water relax whatever parts of me needed it....but would not get me all potsy. I also had one of those big recliner chairs and I slept in that sometimes. I also put extra padding on my bed and that helped... Hope you find something to make your nights tolerable...

I agree Morgan! My husband seems to think a particularly loud one is some kind of accomplishment! My daughter on the other hand can do them at will. we told her 'it is not nice to toot on demand', to which she replied (at the age of three) ' ok, then I will toot on the lady'. guess whose lap she came to sit on?? lol Meanwhile I am doin' a penguin walk to the back door. p.s. I got some activated charcole tablets....Hoepfully they will work some.. Maybe I can hire my self out as a weapon of mass destruction? lol

I have done the gamet in my life...From two years pretty much bed bound (on good days just house bound) to working and feeling ok as long as I was careful....to various stages inbetween. But I got from one point to the other by pushing myself, slowly and at my own pace. I live a very scheduled life, but I determine the schedule. And like someone eles was saying...I schedule downtime! I have to or else I will crash. I cant compete on the normal people stage and by their standards, I hate that fact...but it is true. I have found that I can only pretend to be normal for about two days...if that...and then crasho..I am so sick for weeks. When I really went thru a time in my life where I had to push myself...I made a list of people who worked or lived along my bus route, and If I had to..I would drop in. There were a few days where it took me two hours to make a 20 minute bus ride...A few times I made it as far as my dads office and then he or a friend wold drive me home... When I was able to get a car and we had moved within 10 minutes of work the parking guys gave me free parking so I would not 'look so tired and sad' when I got to work...Those were the sweetest guys!!! I like the energy points idea too!

I have noticed it with me too... When I was bed bound years ago it seemed to make it so much worse, to much worse to get out of bed...vicious cycle. But if I do too much it is bad too.... It is like walking a tight rope.

This is fun. I know that if I drink apple juice or more than a glass of orange juice I will be a real stinky person. Onions is curious.... We eat a ton of them, like every meal. We also eat tomatoes and mushrooms in about every meal as well...Maybe I should go back to steaks? lol Then of course there is the chicken vs red meat debate... Bird flu vs mad cow....Maybe lamb? Futurehope - yea, I would like the name of the antibiotic...if it will work, I am game... I agree about compression hose....I mean when it is noisy you cant slink away w/o everyone knowing who done it.....lol My daughter calls me a "tooterpotomous" . I'll try some of these ideas...

ha.ha you guys are a gas! he.he. NO I dont eat much peanuts. We do eat mostly rice, beans, tempeh, seitan, seaweed, mushrooms, etc.. some tofu but not too much...etc. Difinately veg heads. Tree huggers-R-Us. I tried gas-x once but it did not seem to help much. I mean my husband actually asked me to stick my keaster outside when I felt a, err, noxious abnormality, coming.... Boy if the neighbors dont think we are weird now.......(-; It is terrible. I would not care if it werent so noxious. I love the filters, what a hoot! Its terrible when you can not stand to be in the same room as your keester. lol

Does anyone here get gas A LOT? And of the non benign to those around you type?? Any advice appreciated...and my family will thank you too!!! I don't eat meat at all.. (-;

Well my family is a mix, but a good portion is ulster scot (scots who lived in ireland due to religious persecution) and the other side is german jews. SOOOO I make challah (braded egg bread) every week, but this week I dyed it green for St patties. lol

Yea, I wake up always between 3 and 5am every morning...have for always. I usually do have to be careful then too cause I almost always, always start to grey out...How bad it is determines for me how the day will go... lol

wow, too cool! no I am getting no treatment and my eyes get very burny a lot. It feels lik that little caruncle thing swells up when my eyes burn. They like to burn while I am driving at night..or in odd lighting situations... I have also had my lacrimal sac get swollen infected and even bursted...that was too fun. (that was last summer).

Hello and Welcome! If you can ask your employer for a chair with a foot rest, it helps a lot! I have one and love it. (I also have a desk job and sitting for more than a few minutes w/ my feet down is just miserable). I have used boxes, shelves etc and finally got up the nerve to ask. They don't cost that much more than a regular nice office chair. I also get up at least once an hour for a little walk..Even if it is just to go to the bathroom and get something to drink. That is important and necesary for me too. I eat a few small meals too...or is it snack all day...I wonder sometimes. lol

Those are beautiful! You are a lucky lady!!

Happy Birthday!!!!!

Happy Birthday to you! Happy Birthday to you! Happy Birthday dear Roselover!!! Happy Birthday to you! Hope you have a great, happy day!

interesting. I would say canker sores but they do not occur on the outside of your mouth. Do they look like white spots w/ a red halo? I use licorice root (just the dgl stuff you can pick up at a health food store) and it helps reduce the pain...if what you have is canker sores. Licorice root helps maintain the covering on ulcers and things and canker sores are mouth ulcers. Wish I could be more help..

Thats a very good point! I had a saline/glucose drip during labor and that, I feel, made a huge difference! make sure you ask for that.

I am not a doctor but I can speak from my experience. I actually felt generally better when I was pregnant. I did get the near syncope a few times, later in the pregnancy, and found that the added weight of the baby made stopping the syncope a bit harder. Sitting down no longer mitigated it and I had to experiment with laying down positions that helped. But other than that I had an easier time w/ the dysautonomia...now morning sickness was a different thing entirely. lol

What is that pinkish tissue at the inside corner of the eye called?? When my eyes really bother me i(Driving at night, for example) it feels like that is bigger and swollen..I cant seem to find that info on the internet.... Anyone know??

Well I am still working on that one... Desk jobs, with chairs that have a footrest and where you can recline the back... Lights that you can either cover or unscrew to turn them off. Also jobs that are very structured, preferably by you, so you can have down time and pace yourself. I liked the retirement plans analyst position I had at an insurance company...although First quarter they will push you to work overtime...I never did it though. Now I do customer service / software support but most of my job is doing training over the internet or creating recorded trainings...so I can structure a lot of what I do...usually. (-; Jobs where I had to be on my feet were bad. Jobs where I had an unfixed schedule (where you found out what you worked the week before) were bad. I do have to get up and walk around every 30 min to an hour...so Someplace with a strong ergonomic focus is good...big companies are like that...They will tell you to get up every hour and stretch, focus your eyes far away etc.. Or win the lottery...lol

I had chest pain like last week that was awful. It was like with every heart beat or every breath in...got hard to tell. But it was stabbing and radiated down my left arm, around my chest and in my neck and jaw. It was miserable. Mine Came and went for several days...And I still dont konw what it was. I went to the ER and they ignored me for three hours and I left. I did see my cardiologist days later who ran an ECG and all was fine. So I dont know but it definately was scary and miserable. Mine only got bad for 15-45 minute bursts and then would die down to intermittant stabbing w/ general aches... fun... Let us konw what you find out...

ah yes... I was told in high school that "i made myself faint' and that "I dreamed up the headaches." yea, well I wish I would quit doing that...and while I am at it...maybe I can snap back to sanity and remember where I left my swiss bank account number..... lol

I dont know if it goes away completely but I doubt it. I think it can lesson substantially at times, kind of like being in remission...where the symptoms are tolerable...Plus we learn to deal with them and that makes life easier. I have been bed ridden in my life but I am no longer that way...so it can/does get better.

I think if you loose consciousness a lot then you can't drive anymore. Luckily my body stays at a dull roar most of the time...so I have the LOC down to two bad days a year.. I can tell when I wake up in the middle of the night if I am going to have a day, so I stay home then..

Keep hope. You will both be in my thoughts & Prayers... I started having symptoms around the age of 3. I would start to feel bad and go hide in the closet etc. I first fainted at 5 (I am 33 now). If she is dysautonomic, she will be ok. It is life altering but not fatal. Leave pretzels around for salty snacks...I do that for my daughter (she shows no symptoms yet but this can be genetic.) There are many different flavors of dysautonomia...and I cant remember them all at this time. The dysautonomia youth network is at http://www.dynakids.org . Contact them, they are really really good about getting back to you fast. Dr. Grubbs latest article is at http://www.medscape.com/home , search on postural tachycardia (you have to sign up, but it is free) I also like http://heartdisease.about.com/cs/womensiss...autonomia_2.htm as it gives you dysautonomia in simpler terms. You can get books and videos of a conference on dysautonomia at http://www.ndrf.org/ParoxymalAutonomicSyncope.htm