mbevans

My father, age 78, was recently diagnosed with pure autonomic failure (plus no sympatheic nerves in the heart). His orthostatic BP is severe with drops into the 70-80's when standing (and dizziness). he has been worked up at the NIH and confident with the diagnosis, but needs guidance on how to live with this disorder and a doctor to manage his everyday needs. He is otherwise healthy and is getting very frustrated. He lives in Maryland and I wondered if 1. anyone knew any physicans in this area that might take on a new patient and 2. what type of physician do most people get managed by (cardiologist, neurologist, etc...) and 3. Are there any phone type support persons (he doesn't use the computer)? I appreciate any guidance possible. Mags