singlegirl03

susie, when i have what i call my "episodes", in which i get hot,dizzy, lightheaded, and then pass out and start having 'tremors' my whole body aches.. usually my legs are very stiff after they happen and it takes a few minutes for me to be able to move them freely again. my episodes usuallly lsat 5-10 minutes also, but i have had quite a few that have lasted up to 40 minutes. i have been to the chiropractor and it does make me feel better for a few hours afterwards but then it doesnt do much good when i have another episode. i have also thought about having a massage but then again, im not so sure that would even help. i have considered even gettin a back brace to wear so that i can keep my back in a good position. like you, i also dont remember the jerking i do when i have my episodes.. all i remember when i come back to conciousness is that i felt hot and dizzy and passed out. i have terrible migranes all the time now and along wiht that usually comes nausea. i have heard the best therapy is any kind of water therapy. my doctor said that any kind of water exercises are great because it helps the circualtion. feel free to email me on here or at my personal email (singlegirl03@hotmail.com).. if you have msn or aol i would love to talk with you about it. its interesting finding out about other people who have the same condiditon i have and finding out how long they have had it, their symptoms, and how they deal with it. hope that helped any at all brittany

hi.. i also have POTS along with a few other things. but thats not the point. i jsut wanted to warn you of taking the ortho tri-cyline or whatever birth control you are on. depending on the medicines you are on it can have a bad effect on POTS(i have learned this by all the research i have done on POTS).. a couple good safe birth controls that you could talk to your doctor about using are seasonale and yasmin. i have tried both of these and they are wonderful. with the seasonale you only have a menstrual cycle every 3 months. which is wonderful! but just look into it and talk with your doctor about it thanks brittany