maggee

that's my sentiments, exactly, Futurehope.......!!!!!!!! had so many bad medication reactions...am lucky i survived some of them---truely!!!!!!! grrrrrrrffffffffffffffffffffffffff!!!!!!!!!!!!!!!!!!!!! Maggee

hi all! oops.....don't know why THAT happed....but just a reminder to those on florinef...or any steroid: need to increase potassium-magnesium-calcium.......as body gets depleted of all ofthem when on steroids, like florinef. (((((hugs))))) here's to better days Maggee

margaret, can we use prescription form of potassium chloride in recipe?? dose of pill form i got is 20 MEQ. THANKS SO MUCH! maggee ps=((((((huggsssssss to all))))....and MAGGS [HOPE U ARE BETTER SOON,HUN!!!!]

my heartfelt thanks......to all of you that replied.....!!!!! trying betaxolol tomorrow.....and feel hopeful it will be better than the inderal trip i've been on. again---thanks for giving me some confidence and hope for some better days!!!! ((((hugs)))......to all of you, hoping tomorrow is 'a good one' for you. best regards, and gratitude... Maggee

hi all:) any ever try OTC stuff called EMETROL? IT'S A LIQUID....NO DRUGS...OR INTERACTIONS THAT I KNOW OF..... sugary liquid substance...and for the life of me...i do not know why it works....but it does for me. can buy the store brand generic also....it's cheaper==just won't say EMETROL on it...but anti-nausea something on box. usually located right next to regular brand of emetrol...on shelf. sorry for all you going thru..... ackkkkkkkkkkkkkkkkkkkkkkkkkkkkkkk!!!!!!!!! [[[[[[[hugs]]]]]] Maggee

HI! i can't handle anyyyyyy ssri's......at all......!!!!!!!!! tried lexapro...2.5 like u...and it was hoorific! miss me--trying to wait til horrible side effects go away.... i do not believe WE ARE SSUPPOSE TO HAVE ADVERSE REACTIONS/EFFECTS TO DRUGS....!!!!!!! I AM ON BETA BLOCKER...LOW DOSES....and do take xanax....also. klonapin in same family as xanax... have friend who tolerates lexapro fine[non-pots person]....and also takes xanax---no problem. are we sick of this?????????????????????????!!!!!!!!!!!!!!!!!!!!!!!! oh my............. anyways====[[[[hugs]]], hun...... hope this helps in some way:) best regards, Maggee

hi Jen, think mobic is a Nsaid......like motrin..... all i know...is motrin raises BP SOME...BUT more if your on a beta blocker med. couldn't see your meds..but motrin seems to be raising my BP more...cuz i'm on beta blocker inderal. thought perhaps, this may be your circumstance also...? anyways ((((hugs)))), Jen.... and good luck figuring out 'just one more of our mysteries'.......lol! Maggee

hi all:) has anyone had more success with betaxolol than with inderal? i am on inderal now..and notice alot of you are on betaxolol, and do not see alot on inderal. inderal brings my heart rate down....but then has a tendency to RAISE my blood pressure--of which....makes me incapacitated also. still don't understand, how a beta blocker blood pressure med--can raise your blood pressure??????? and here i am fending off low blood pressure...for years...w/tachy....and never have had high blood pressure. anyways, this 'program' is not working---and would appreciate any feedback on any beta blocker experience---good and bad. also-the way i eat.....should not be gaining weight --at all----but gained 8 ilbs since trying inderal ANYONE EXPERIENCE WEIGHT GAIN W/ BETA BLOCKERS??? ARGHH-H--H-H--H--H--H-H-!! THANKS SO MUCH...in advance.... keep on keeping on....all! where would we all be without this group? hate to think..... (((((((hugs to all))))) Maggee

hi! posted this to another topic...too... and hope it helps you too!! ------------------------------------------------------------------------------------ hi all! i read SOMEWHERE...and cannot find it now.........that dysautonomia affects metabolism.....bigtime...and can throw us into bouts of hypoglycemia easily---due to what we eat. i have avoided refined sugar/high carbs ALONE====>[TRY-I SHOULD SAY..LOL].....eat only small meals for years...since being sick and undiagnosed for years.... as the following info helped me alot!!! [also--processed foods...nitrates...-NO CAN DO! ] ================================================= INFO GOD SENT ME:): Balancing Your Meals For Blood Sugar Control ? Eat a small meal or snack every three to four hours. ? Eat within the first hour upon awakening. ? Eat a small snack near bedtime. ? Eat before becoming hungry. If hungry, you have already allowed yourself to run out of fuel [low blood sugar/ hypoglycemia] Balance Your Meals The optimal level of insulin to glucagon is achieved by a diet that contains carbohydrates balanced with proteins in a ratio of approximately two to one, that is, approximately two grams of carbohydrate per gram of protein and gram of fat per meal or snack. The Role of Fat A small amount [3/4 tsp. to 1 tsp.] of fat (butter)[no margarine] or cold pressed vegetable[virgin olive oil] or seed oil should be a part of each meal in order to help control the rate of entry of glucose (blood sugar) into the bloodstream. ================================================ ****GUESS WE SHOULD ALL EAT THIS WAY, ANYWAYS...... ****ARTICLE ALSO INDICATED HOW ADRENALS GET EXHAUSTED...AND EXPLAINS WHY...WHEN WE DON'T BALANCE CARBS/PROTEINS....with or without having dysautonomia. ****i was so thankful when the Lord showed me this info......hope it helps all of you also!!!!! ================================================= An excessive ratio of carbohydrates to protein results in excess secretion of insulin, which often leads to intervals of hypoglycemia. The body, in an attempt to normalize blood sugar, initiates a counter-regulatory process during which the adrenals are stimulated to secrete increased levels of cortisol and adrenalin. It follows that an excessive intake of carbohydrates often leads to excessive secretion of cortisol. This contributes to chronic cortisol depletion and consequently, adrenal exhaustion. In order to stabilize blood sugar, you must maintain a balance between two hormones, glucagon and insulin, which are produced by the pancreas. Protein in the diet induces the production of glucagon Carbohydrates in the diet induce the production of insulin. Insulin promotes fat (energy) storage. When excess carbohydrates are eaten, the body produces large quantities of insulin and little glucagon. This high level of insulin results in more fat being formed and stored. When insulin is high and glucagon is low, the adrenals are called upon to produce excess cortisol (see later on in the document what cortisol is all about) as a back-up response to help raise blood sugar in the absence of adequate glucagon. This occurs at the expense of the adrenal glands, contributing to adrenal exhaustion. ================================================== God Bless all of you! Maggee

hi all! i read SOMEWHERE...and canot find it now.........that dysautonomia affects metabolism.....bigtime...and can throw us into bouts of hypoglycemia easily---due to what we eat. i have avoided refined sugar/high carbs ALONE====>[TRY-I SHOULD SAY..LOL].....eat only small meals for years...since being sick and undiagnosed for years.... as the following info helped me alot!!! [also--processed foods...nitrates...-NO CAN DO! ] ================================================= INFO GOD SENT ME:): Balancing Your Meals For Blood Sugar Control ? Eat a small meal or snack every three to four hours. ? Eat within the first hour upon awakening. ? Eat a small snack near bedtime. ? Eat before becoming hungry. If hungry, you have already allowed yourself to run out of fuel [low blood sugar/ hypoglycemia] Balance Your Meals The optimal level of insulin to glucagon is achieved by a diet that contains carbohydrates balanced with proteins in a ratio of approximately two to one, that is, approximately two grams of carbohydrate per gram of protein and gram of fat per meal or snack. The Role of Fat A small amount [3/4 tsp. to 1 tsp.] of fat (butter)[no margarine] or cold pressed vegetable[virgin olive oil] or seed oil should be a part of each meal in order to help control the rate of entry of glucose (blood sugar) into the bloodstream. ================================================ ****GUESS WE SHOULD ALL EAT THIS WAY, ANYWAYS...... ****ARTICLE ALSO INDICATED HOW ADRENALS GET EXHAUSTED...AND EXPLAINS WHY...WHEN WE DON'T BALANCE CARBS/PROTEINS....with or without having dysautonomia. ****i was so thankful when the Lord showed me this info......hope it helps all of you also!!!!! ================================================= An excessive ratio of carbohydrates to protein results in excess secretion of insulin, which often leads to intervals of hypoglycemia. The body, in an attempt to normalize blood sugar, initiates a counter-regulatory process during which the adrenals are stimulated to secrete increased levels of cortisol and adrenalin. It follows that an excessive intake of carbohydrates often leads to excessive secretion of cortisol. This contributes to chronic cortisol depletion and consequently, adrenal exhaustion. In order to stabilize blood sugar, you must maintain a balance between two hormones, glucagon and insulin, which are produced by the pancreas. Protein in the diet induces the production of glucagon Carbohydrates in the diet induce the production of insulin. Insulin promotes fat (energy) storage. When excess carbohydrates are eaten, the body produces large quantities of insulin and little glucagon. This high level of insulin results in more fat being formed and stored. When insulin is high and glucagon is low, the adrenals are called upon to produce excess cortisol (see later on in the document what cortisol is all about) as a back-up response to help raise blood sugar in the absence of adequate glucagon. This occurs at the expense of the adrenal glands, contributing to adrenal exhaustion. ================================================== God Bless all of you! Maggee

hi maggs:0) many times 'scarring'....is indicative of past pneumonia scarring. since it hasn't changed since november---this is even more indicative--that it is scarring:0) smoking--usually causes what they call 'infiltrative' affects...on lung xrays. neither are indicative of cancer, on an xray report. i smoke tooooooo.......ackkkkkkk--and wish i could just hate cigs....but all emotional for me....dang crutch....and something, i guess to do...when this pots thing keeps us incapaciated...and inactive....yada..... just one emotional crutch......i am willing to admit.... hope i just darn hate cigs some day....! anyways, hope this helps,hun... (((((hugs)))))) Maggee

yep....bury it in butter....pudding....icecream....in your mouth b4 swallowing... goes down like a champ!---lol! (((hugs))) maggee

hi all:) i been thru the gammet w/ bad endos....oh my.... ,,,,,and find most endos are not too focused or educated on adrenal probs... and labs are black/white to them...with no inbetween dx of adrenal fatique. it's either addisons....or its 'all in your head'...as usual!!!==arghhhhhh! anyways, MORGAN>>>>> noticed you live in spokane, washington. i befriended a man named Ben Lynch (ND Candidate 2007)....via internet..... he owns a business called healthy goods.... and i purchased a few things from him. he is in bothell, washington...i believe...and is shortly to become a naturalopathic MD....AND is smarter than any doc i've been to....and studies under some of the finest. don't know if you are near him....but know adrenals are one of his peers specialties, and may be able to direct you for some appropriate help!!!!!! only wish i lived there....!!!!!!! just email him....or call him....know he'd be glad to talk to you:)!!!!!! such a great person.....also.... out to make a difference in any way he can, and he will be a blessing to the many who will cross his path. below is the last newsletter i got from him... anyways.....huggggggsssss.....hun.....and hope Ben can direct you! best regards, Pam Selby [maggee] ==================================================== Natural Health News from Ben Lynch (ND Candidate 2007) May 2006 - Vol 1, Issue 5 In This Issue Prevent Weight with Sleep Histamine & Vit C Toxic Fruits & Veggies Guide Dr Michael Murray, ND Free Shipping! Featured Product: OxyATP Sign Up Health Resources World's Healthiest Foods Natural Health Forum Alternative Medicine Research Family Medicine Notebook Environmental Health Food Nutrient Data Ask a Health Question Dear PAMELA, As you requested - your natural health newsletter and discounts. We are steadily growing thanks to you! We have added two new people to our team, Anna and Jennifer. We also have a toll free phone: 1-877-485-4042! Finally! Prevent Weight with Sleep According to a study of nearly 70,000 women over a period of 16 years, researchers found that women who slept 5-6 hours or less had significant weight gain (33 pounds more) compared to women who slept 7 hours or more. Besides the scientific hormonal leptin level influence, my take on this: If you are sleeping more, you are not eating as much. If you are awake more, you are more exhausted forcing you to eat more sugary snacks to keep you going. So - lose weight and get more sleep! Aim for 8 hours. Side note: Fibromyalgia sufferers are found to have poor sleep history prior to symptom onset. So sleep may prevent fibromyalgia. Histamine & Vit C According to Tulane University's research, there is an inverse ratio between blood histamine levels and blood vitamin C levels. What does this mean? This means that a person with low circulating vitamin C is more likely to be more allergic or sensitive to seasonal pollens, pets, foods and others. Histamine triggers your blood vessels to open a bit allowing your immune system out and about. A hyperactive immune system is not ideal as it causes immune cells to react to more substances. (Very short story to a complex subject, but you get the point!) Put simply, increase vitamin C intake and decrease histamine. Given that this is allergy season, that little tip may prove useful for many. Put away Benadryl and pick up vitamin C. I find that the buffered forms of vitamin C are easier on the gut. If you can stand the powdered forms, they are way cheaper. Look for buffered vitamin C at your health store. Read the histamine vitamin C study... Toxic Fruits & Veggies Guide Yep I sent this last month as well. But given that it is high time for fruit and veggie buying, I want to let you all know again. I have a wallet sized list of the Twelve Most Toxic Fruits and Veggies to avoid. The list also contains the 12 safest. This way you know how to spend money on expensive organic produce. Save the money on the safest produce and spend the money buying the 12 most toxic organically. Protect yourself, friends and kids. Tell all your friends about this document. It's free. Get the Wallet Card Free NOW before you forget... Dr Michael Murray, ND You know the famous book author? Dr Murray came to talk with my Practice Management class last week. He is an inspiring man - not to mention an exceptionally talented one. He has a newsletter which I highly recommend you subscribe. His last one provided information how NSAID's (non steroidal anti-inflammatory drugs) are basically worthless for many conditions. Backed with research, there is not much one can do to disprove his statments. He also features a Q & A area that is informative to many. I also feature this service on HealthE Goods but I must say, he has a tad bit more clinical experience and knowledge behind him. Visit Dr Murray's website and subscribe... Free Shipping! Your monthly saving's voucher is: BlueSky This voucher entitles you to free shipping through June 6th! Free shipping is valid through June 6th so use quickly. Pass the voucher code, BlueSky, to your friends and family so they also get free shipping through June 6th! (Please note: valid for ground USA orders only. Ill reduce shipping costs to our international customers by 50%! I hear you!) Apply 'BlueSky' now for Free Shipping! Featured Product: OxyATP Mitochondria are the work force of our bodies. Without them, we are dead. When not working well, we are susceptible and likely in a disease state. When in a disease state, our mitochondria are damaged and must be repaired in order to help pull out of that disease state. OxyATP provides direct mitochondrial nutrient support. A multi-vitamin is excellent. Soon, emphasis will be on healthy mitochondria in order to maintain optimum health. It is on my radar. Learn about OxyATP here... Middle of next month, HealthE Goods will have a new home and new name! Seeking Health will be our new name and website featuring the same products, better service and overall more user-friendly. Take a sneek peek: Seeking Health Please note that Seeking Health is not yet done so do not purchase anything from there! Just look and see what is about to be an excellent natural health resource! I would love to receive your feedback! For now, continue enjoying HealthE Goods Natural Health Store. We love working with you and look forward to interacting with you again! Ben email: ben@healthegoods.com phone: (877) 485-4042 web: http://www.HealthEgoods.com Forward email This email was sent to selbypal@comcast.net, by ben@healthegoods.com Update Profile/Email Address | Instant removal with SafeUnsubscribe? | Privacy Policy. Powered by HealthE Goods | 10020 NE 201st St | Bothell | WA | 98011

wow, Lisa...so happy for you!!!!!....and glad the trip is over for you, and you can rest up now from it:) i, also, am going to see Dr. Grubb, when i can get in...and would like to know if you had to stay more than one day for any tests??? i live far [for me,anyways--its far....lol ]....and have been wondering how long i would have to be away from home, when i go---as got a sick husband here..and cat that needs insulin shots 2x a day....so arrangements--some kind--would have to be made for their care...as well as getting my butt there..... would greatly appreciate any info/feedback,hun....and my prayers are with you that the new drugs, and exercise are a blessing to your health and take you onward toward a better life---and hopefully that dream of motherhood---->>>to be fulfilled! thanks in advance..... best regards, Maggee

hi! just in case your not aware: florinef is a steroid...and steroids deplete you of potassium/calcium/magnesium. best intake of potassium is from food... know sweet potatoes...and tomato juice are high sources...as well as bananas. can look up on net...to see food list:) i take a 2:1 ratio of calcium:magnesium also. i buy a cetain brand, so please PM me if you would like to know brand:) know lack of potassium and magnesium can cause tingling, amongst other things, and can be ever so dangerous!!!!...if you get too low or high in the potassium....!!!! hope this helps! ((((hugs))) Maggee

OOPS....... BY THE WAY..... celiac dx diagnosed by 4 or so blood tests:) Maggee

HI! A FRIEND JUST WENT MANY YEARS...SAMO PROB.......AND DOCS OVERLOOKED POSSIBILITY-----COMPLETELY OF 'celiac disease'....WHICH IS A PROB W/ SMALL INTESTINE...CAUSED BY GLUTEN DISTROYING VILLI IN SMALL INTESTINE...AND symtoms range from chronic..'got to go'-no warning...or bam!....to bloating..constipation...yada.... ***so search on web....very interesting! so sad....so many years go by...and these docs not 'cluing in' on so many possibilities.....arghhhhhhhhh!!!!!!!!!! anyways....i surely would inquire...and hopefully the doc doesn't go the all 2 heard response of==='what's that???!'......oh my....... good luck hun....heck of a horrible way to live on top of all else we endure. best regards, Maggee

hi! i've tried them all...... best....most comfortable....and i am miserable w/out them: SIGAVARIUS BRAND....DO THIGH HIGHS....30-40 COMPRESSION.COME IN 3 COLORS. BEEN WEARING FOR YEARS........ BUT, NEED DOC PRESCRIPTION, KATHY. best regards, Maggee

hi! just my 2 cents: i have had fibromylagia for years...... ...but didn't start with joint paint [boths knees..shoulder...lower back=UGH!!! ] until i started on beta blocker--inderal...bout 3 months ago. you didn't list your meds..so don't know if you on a beta blocker. this doesn't seem coincidental to me at all, but as always, it could be...?? my overall pain is worse since on the beta blocker. best regards, maggee

hi Julia, i used to do cardiac ultrasound, and Mvp's....in yonder years...earlier,i.e....were easy to manufacture...and give a false positive dx....OR MISS...AND GIVE A FALSE-NEGATIVE DX. SO, could be case..when you got positive diagnosis....before. today, i believe diagnosis' are more accurate....but again---depends on expertise of who is doing them, needlesstosay, as w/ everything:) **my cardio--told me....mitral regurgitation......very minimal...on my ultrasound===WAS 'ARTIFACT'....and not real. said artifacts in that realm show up on most ultrasounds. anyways...sorry bout going thru that with your teeth...sounds horrific! hope this helps.... best regards, Pam

my joint/muscle pains became worse with use of beta blockers...and also leg swelling incresed with their use:( compression hose===cannot bear to be without them on! got to find right style for you tho'....and mine are thigh highs....===the best! so comfortable! can't state brand name here....so please PM me if you'd llike to know! [by prescription only....not OTC'S] BEST REGARDS, Maggee

hi radha! yep, sure dOES seem a lil backward,huh.....since beta blockers are bp meds??? here's my scoop on it: first, i have had orthostatic hypotension for years.....never high bp. when i was first trying beta blockers for POTS, I would...[and still do]...take my bp...and eat himalayan salt.....or regular salt with food/water intake....to raise my bp>>>>before taking beta blocker--->>>in order to get heart rate down! quite a long way around to get where you need to go....lol! then--heart rate would come down.....and even hours later.....my blood pressure soaring for me. so i was either sick--from being orthostaticly low....or sick from bp being too high, as i could actually feel it....and was not funny...oh myyyy! what a maize, i thought...as well as...this is not making sense! another no win--i thought? well, was trying only 5 mg inderal at a time....until a week ago....and my body seemed to tell me when i needed next 5 mg...as i would get high blood pressure...and flip-flops a going in my heart [new for me..since on inderal]. ***i asked pharmacist bout this: he said....when beta blocker wears off...the body/brain...says....i am going to make more of the norepinephine....cuz drug decreases it....and body trying to do its compensating thing...and bod says===='lets make more'...which causes bp to go up.....AND BOD ASKING FOR MORE BP MEDS.....????? ***second factor i concluded over time here: on beta blocker write-up....from drugstore>>one of drug interactions mentioned----are NSAIDS........LIKE MOTRIN. I have taken motrin PRN for years...as cannot tolerate any other pain meds....that i know of....outside of aspirin or tylenol. i asked doc bout taking motrin with beta blocker-----and he said===="go ahead----it will only raise your bp some.....and you need that"....... i conclude now that motrin was contributing to making my bp raise too high, in conjunction with the beta blocker. so am trying now to survive w/ only aspirin or tylenol. NOW:am off motrin...as stated....and taking 10 mg inderal 2x within 24 hours..... .......seems i only need a little extra salt intake, especially in morn to raise bp---to take beta blocker.....and i drink water all day, as usual......and when i take inderal......i make sure i take some tomato juice....which has salt and good amount of potassium.....and also take calcium/magnesium....when i take the inderal. do also take b-12-folate-b-6 1-2x day....as well as certain brand of omega-3 codliver oil....and certain brand of vitamin e. [pm me if you want to know brands...:0)] so, being on consistant higher dose....of 10 mg inderal ---2x per day....and being off motrin....keeps me from having the spiking TOO HIGH raises of high blood pressure.....that were making me so sick...[and confused!!!.....lol!!!!] **heart flip-flops decreased also now. let me know if any of this 'rings any bells for you'....?????? let me know if this is too confusing, and if i can offer more explanation, Radha:0) best regards, maggee

claire.... oopszzzzzzzzzz! forgot to say===i use my blood pressure as my marker for needing or not needing salt. i'm on beta blocker also...which seemed to decrease my need for salt intake....as my bp running higher since on beta blocker. also see you take ibuprophen[motrin]...which can increase your bp. so every day diff for me... some days..i do not even need salt..others i need alot...and i just add himalayan salt to some food. best regards, maggee

hi! some facts: ----20 MEQ k-dur/potassium====1500 mg. potassium ----we need estimate of 3000- 4000 mg. potassium/day [so i read on the net ] ---do know all steroid drugs...like prednisone,hydrocortisone,etc...will deplete you of potassium. ----on other hand--ADRENAL INSUFFICIENCY WILL CAUSE BODY TO STORE POTASSIUM IN EXCESS. so---tis a great, delicate balance to be aware of...and try to keep, as both too little--or too much....can be VERY CRITICAL, as you stated. ***many drugs can deplete....or increase potassium....in our systems. ....and am sure---many drugs have no affect on potassium whatsoever. i was in a horrible state of hypokalemia when i was on hydrocortisone, and doc neverrrr told me to increase my potassium......after 11 weeks!! i literally thought i was dying...and am sure i almost did. perhaps, in view of you having episode...that morn..before blood draw..and now knowing you were in hypokalemic state......>>>>> >>>>>your episode was lack of potassium orientated?????..or made your episode 3 times as worse as would have been????? SOMETIMES--cannot see forest for the trees, when dealing with all things to balance....all our symtoms, and surviving/alleviating them....and so many drug sensitivities too..... WARNING: medications===DO NOT>>go by the write-up we get from drug store, on whether A MEDICATION affects potassium levels....either way. ***if potassium not mentioned... >>>>search the net.....check with doctor....whatever you can do...to get correct answer, for everything you are taking! such a fine line we must try and walk each day......but thank goodness and the dear Lord we have this group, and each other!!!!! anyways.... i would try a 1/2 or 1/4 tablet at first....[as i do with allll meds.......lol ] .....and make sure you sit up for 30 minutes after taking.... [on the drug-store write up ] hope this helps.... best regards, Maggee

hi all.... just a quick question, as i see many refer to B12....but i can't ascertain...in the posts...if B-12 is helpful....or harmful to our systems with POTS, ETC....??? KNOW some B-vitamins can be agravating to us...like niacin...but would appreciate feedback on B-12...and any other vitamin 'goods--and bads'....! thanks so much! hoping all having a fairly 'decent day'......:0) Maggee