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cimyss

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Everything posted by cimyss

  1. Thank you so much everyone:) I really want to help my daughter face this and not be an awful naggy mom about it:) My child has already been through so much with pins in both hips and adhd and so on that honestly we ( doctors included) have brushed these symptoms aside until they became so prominent. everyone has said things from growing pains to side effects. I am glad her doctor finnally took this seriously and is doing something about it. On one hand i am glad to know what is happening and the possibilty she will feel better and possibly have more energy once diagnosed and treated properly. On the other hand knowing this disorder even exists is frightening. I am not very good at understanding all these medical terms, medications, tests, and so on.... Thank you Sal and Angie for your PM's and taylortotmom Aprilmarie52 Eillyre Evie who replyed here letting us know this can be handled with a more possitive outlook:) thanks a bunch it reallly does help It is so wonderful to know you guys are here:) Sorry Aprilmarie52 but the doctors listed are further away and/not refered by my childs docotr for her insurance. I wish I had the abilty to pick a doctor based on this feild. you guys are so wonderful thank you for reminding me to remain possitive cimyss
  2. Thanks Evie! This has been horribly scarey for both of us! I am so glad to have found this place and know we are not alone Cimyss
  3. Hello Everyone:) Recently my daughter's doctor said she believes my daughter has POTS syndrome she had the elevated heart rate of 30 beats per minute on standing. And had gone to the ER due to increased fainting/ dizziness/ blind spells. They are sending her thursday to see a pediatric cardiologist and (I noticed everyone here talks about neurologists) can anyone help me understand how to help her. What should we expect to happen and so forth? The amount of information I have found on this is mind boggleing but as we have to travel 300 miles to see this doctor i want to make sure I am prepaired with what to ask. Any help at all is greatly appreciated Thank you from both of us Cimyss
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