Lisa

Hello all, Happy holidays everyone!! Well, of course I have yet another question to ask you all I was wondering if anyone knows if it is harmful to drink alcohol when you have POTS. Personally, my experience has been that having a hangover in the morning is actually better than the usual morning crappiness I feel with POTS! What do you guys think? Lisa

Hi everyone, I haven't posted in awhile. I do have POTS, but awhile ago I also had mononucleosis. Well for the past two says I've been doing nothing but sleeping and I just feel like my body is extremely tired. I feel like I have mono again. Does anyone know anything about this? I once heard something like once you have it, you have it forever and then it comes back. I really hope this isn't true I can't deal with this for the rest of my life, but I really don't know what else it could be, and it feels like mono. People keep telling me that maybe I have the flu but I really don't think it is, it just feels different. Plus added on to my regular POTS symptoms this is ****. Thanks, I hope to hear from you Lisa

Hi, I get this all the time when I don't feel good, or sometimes when it's really hot out. It is exactly as you described. I have found that this is one of the only ways to prove to anyone that I am actually not feeling well!

Before I was diagnosed with POTS, I had a doctor tell me that when you really believe that something is wrong with you, you will actually start to feel symptons even when nothing is wrong. Another doctor told me that I was making it up because my dad was putting pressure on me to play basketball, which was absoltely not true at all. I was just interested to know if any of you guys have stories like this, and how did you deal with it.

I think I actually have had this...I just thought something was wrong with me, I didn't know it was an actual POTS sympton. It probably was the actual brain fog that caused me to not know what it is Thanks for replying

I've read alot of things on here where people talk about a symptom of POTS called "brain fog." I'm not sure if i get this or not, but i think that sometimes it is hard to tell what is normal and what is not since you aren't used to anything else. What happens to you when you have brain fog?

A couple of months ago they were having a blood drive at my high school and I participated because I did not know that it was a bad idea, and I felt like I should give blood since I was so used to having my blood taken. I felt really really weak and lighthead for weeks afterward, and that was when I read somewhere that POTS patients shouldn't give blood. It kind of ***** because I would do it of I could!

Hi again, I just wanted to thank you all for your responses. You guys are the best. It's great to know that no matter what happens during the day, I can come here and be understood, and that means a lot. I just wanted to mention something. I had recently been exercising on my treadmill, but I stopped because it was just making me extremely tired. But then today in gym we went to the fitness room and I remebered something my doctor, who also had POTS, told me. It's actually pretty simple, and I can't believe I never thought about it before. She mentioned that the reason why I was having so much trouble excercising was because I was standing on a treadmill for 20 minutes and that an exercise bike might be better because i'm sitting down. Well today in gym I tried the bike, and let me tell you it was a world of difference. It just seemed so much easier and-I wasn't late to lunch! I guess that means I wasn't that tired! Thanks again, guys. I'll talk to you soon. Lisa

Hi everyone OK so I just want to tell this story to people who understand. I am a senior in high school and I have to take gym class. The school nurse and the gym teacher both know that I have POTS even though they don't fully understand it. They just know that sometimes I need to rest. So sometimes after gym class my whole body just feels really tired and weak from all the excessive activity. Because of the POTS, I get that feeling where your whole body just doesn't feel like moving. Since my body felt so weak after gym I would take my time to get to the next class-which was lunch. I didn't think it was a big deal that I kept on being late for lunch, especially because I had a good reason. Well one day in lunch a teacher comes up to me and says I have detention becuase I was late to lunch 3 times. Now, I have never ever had detention in my life or been late to any classes. I calmly tried to explain to him that I had a heart problem. I told him I had a doctors note if he wanted to look at it but he refused. I explained to him that I did not really care if he gave me detention, but that he should understand that I would probably continue to me late in the future. Then he told me I had to go talk to the nurse and bring him a note from them the next day. So I went to the nurse and they were like "Well why were you late to lunch?" and I was like "Because my whole body was very tired from gym and when it gets like that I can't move very fast." and they were like "Well why can't you get there on time?" and i'm like "because my whole body hurts and I can't move fast!" and they kept on asking me the same question but it's just so hard to make someone understand. The next day the same teacher comes up to me in lunch and tells me "he'll let it go this time." and that if I got very tired after gym to get a pass from my gym teacher but that "I wouldn't take advantage of this situation" Umm..Hello? Why would I want to be late for lunch?! It's only lunch! It's not like I'm late to any real classes! So I just had to tell someone this story who understands how I feel. Thanks for letting me vent! Lisa

Lately I've been drinking bottles and bottles of water, but no matter how much I drink my thirst will not be at all satisfied. My stomach becomes so full of water that I almost want to vomit, but I want to keep drinking despite this because I am just constantly thirsty! I was wondering if any one experiences this and if it is POTS related. Does anyone know how to fix this? I was recently put on Florinef and my POTS symptons seem to be pretty much under control. I even started exercising! I'm just having this thirst problem! Thanks -Lisa PS: Plus I have to use the bathroom like every 10 minutes which is really inconveinent!

Today I almost cried with joy at the doctor's office. After waiting for three years, I finally found a doctor who knows about POTS, and how to treat it. And it's all thanks to this web site! I just have one issue. He is going to put me on Florinef, but he said I would probably gain weight. I am pretty skinney and am very scared at the fact that I will gain weight. Right now my symptoms are pretty horrible and exercising is so horrible for me to do, so I feel like if I gain weight I won't be able to lose it. I am only 17 years old, I don't feel like dealing with this, as I'm sure you guys don't as well. Is Florinef worth it? I would appreciate any helpful response, and I wish you all well Lisa