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hopeful-girl

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Posts posted by hopeful-girl

  1. 1. Name: Corina Botkin

    2. Age: 39 creeping up on the big 40 ;-)

    3. Dx: POTS Autonomic Neuropathy, Vetiblular disorder, Gastro Paresis, and now maybe Fibromyalgia

    4. Age at dx: 35

    5. Where you live: Portland, oregon

    6. Symptoms at worst: WOW So many LOL Bad gray outs and some times fall down, wired and shakey feeling, anxiousness, chest pain, shortness of breath and feeling just winded, sharp pain in my stomach and in my chest, inability to concentrate, strares/trances they only last seconds but scarey, freezing or to hot, body pain and ache, freezing hands and feet, dimming vision, Hard time remebering words etc

    7. Symptoms at best: I am really not sure. All the symptoms but not as intence.

    8. Medications/treatments, etc. that didn't work for you: Zelnorm, nexium, domperidome, Reglan, beta blockers, compazine, phenergan, oxycontin, inhalers, oh and ther is so much more LOL I had bad reactions to all of these and more.

    9. Medications/treatments, etc., that do work for you: 1mg xanax up to 3x a day. But normaly limit it to 1 to 2x a day. Prilosec, Zantac, e-mycn, and I have been given florinef. I have just not got the guts up enough to try it yet. I also have been placed on Amitriptyline and have not tried that yet. That is to help with chronic pain and sleep.

  2. Hello. Well IMO mine stemmed from an over dose from cocain May 1986. I started having symptoms after that. Prior to that I never had any problems. 6 months after that I remeber getting sick and I was told I had a heart mur mur. I was never told that before either! My symptoms were very epasodic for years. It gradually got worse threw the years and every doctor I seen kept telling me oh you have anxiety or depression or it is just in your head!! Well I tried 5 different anti depressants threw the years and all of them with in an hour of consumption put me in the ER with a heart rate above 200 and blood pressure low. So no AD's for me!

    For so long before things got really bad and being diagnosed I would make comments to the doctors like I feel like my nervous system is hey wire and they all would look at me and say NO but I think your head is (giggle) Well they may not of always said that but ya can tell when they think that or hint to that!! I would like to face them now and see what they have to say LOL

    But before then I never had any problems. I have been drug free since then too. Almost loosing my life to drugs was NOT the way I was going to keep going ;-).

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