squishedlizard

I've had these problems since I was a child. The doctors thought it was a heart problem and I'd grow out of it. Only a few years ago after they attempted heart surgery did they find out the truth. I've been struggling and I don't know how to handle it. I'm not sure what to do. I get between 10-12 hours of sleep a night. I make sure to eat well. Drink lots of fluids, and other than that, I don't have anything that works. I have been on a variety of different medications and nothing's worked. None of the beta or calcium channel blockers. Etc. My doctor finally took me off everything because my symptoms were worse when I was on medication. But now...I'm frustrated. I was dropped from my health insurance when I moved out of state. I have to work between 25-30 hrs a week to pay my bills. (California is very expensive compared to where I was living) When I'm not working, I'm usually lying down watching tv or sleeping since I don't have energy for anything else. I don't qualify for health insurance through the state since I haven't lived here long enough. I don't have enough money to pay for health insurance or to pay for medical care. I had been coping with it as best I could for a long time, and lately, (probably due to my new birth control, Depo) I've been very depressed and having a hard time keeping my emotions under control. I've interviewed for a really good job and if I get it, I get full health benefits and they'll cover any and all procedures to any doctor that I want to go to effective the day I start my job. But I don't feel as though I can accept the position knowing that I have such hard days where I can barely function. I am beyond frustrated and I don't know what to do. I'm reading through all your suggestions and I've tried most of them. It seems to go in cycles for me. Some things work well for 3 months and then they don't work anymore and I need to try new things.... I feel like I've run out of new things to try. I've been fighting with this condition for 22 years, and getting nowhere but more depressed.

I've had IST since I was 7 years old. It seems to come in cycles. I feel okay for a year or two and then it gets so bad I can't get out of bed for about a year, and then it gets better, and then it gets worse and yada yada yada. Well, right now I'm going into one of those cycles and I don't know why. My doctors took me off meds because they're making things worse. I eat well. I try to get tons of sleep. I avoid caffeine, alcohol, fatty foods, greasy foods (I eat a lot of salad), and too much red meat. I'm doing everything right. I am doing everything that I was doing a few months ago. And yet, all of a sudden, for the past 3 weeks, I feel completely awful. My migraines are getting worse. I'm waking up with heart trouble. I go into minor seizure episodes. I can't eat without throwing up until later in the afternoon. (No, I'm not pregnant.) Constantly dizzy and constantly fatigued. Any idea why it does this? Does anybody else go in cycles too? Any home remedies that work for ya?

Rainy and cold weather makes me feel better. It's very strange. If it is humid but not rainy, I feel like h*ll. If it's rainy, I feel okay. If it's cloudy and muggy, I feel awful. If it's hot, I feel awful. No idea why. But it can't be too cold because if I'm cold and I start shivering, my heart freaks out and I go into a-fib.